NeuroTalk Support Groups - What a "great" night.

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - What a "great" night. (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/194737-night.html)

I went and did it. Im paying the price for it too. I didn't get much but got some of the essential stuff. Like bananas and yogurt for goober boy. I even unloaded and reloaded the dishwasher. If I can keep up this streak and work through the pain I will eventually have a clean house before we move lol:D

Quote:

Originally Posted by Allanira (Post 1019192)

I'm so proud of you!:hug: I hope you are feeling better these days. You are such an inspiration to me, because you not only have rsd, but are pregnant too. Your positive outlook on life gives me strength to deal with this disease. Thanks for that and I hope you have a great day.

Its hard. When your running after a 2 yr old and the dog and wanting to scream because you hurt its really hard. I did my temporal thermometer onmy knees and legs then compared them today. My left is running a lot colder than right. Is this normal? Or just me?

Quote:

Originally Posted by Allanira (Post 1019315)

I'm not sure if it's normal, but I do know that my right (rsd) hand runs alot colder than my left hand. And now my right foot is running colder than my left foot. My pm dr told me it was because of the rsd, so I would think it's normal, but everyone's different so I'm not completely sure. Maybe ask your pm dr to make sure. And I hope you get a chance to rest so maybe you feel a little less pain. Take Care.:)

Thanks Renee, I am being a worry wart I know but my left (rsd leg) usually hotter than right. I think its the weather and this stupid disease morphing. My PM won't touch me while I'm preggo. 13 wks 2 days till I meet my newest and start the rounds of treatments. I can't wait to meet him.

Quote:

Originally Posted by Sylmeister (Post 1018848)

Hi Allenira, I can not even imagine being pregnant and having RSD. I struggle so much with getting through most days that all of you who have children amaze me. I can't imagine being able to be there for a child with the amount of pain we are all in. Seriously, it's amazing to me. I had only gotten married 4 years prior to RSD and we tried unsuccessfully to pull it off in the last quarter (I was 38 when we married) so I didn't give myself much time to even attempt children, though a mother is the one thing I always wanted to be. We had already decided it wasn't safe for me to continue, at my age after two losses. I Still can't imagine social services or any agency allowing us to adopt with my RSD, so family was not working out for us. The sacrifice you are making to have a healthy child is very impressive. Forgoing the drugs that are dangerous, that would give you pain relief. You are a brave one.
Keeping you in my thoughts, Sylvia

Hi Sylmeister,

I've been wanting to text you to tell you how sorry I am that you couldn't have kids. I know it's not the same but dogs are wonderful companions. They are like kids with fur coats on. Anyway, I'm not trying to interfere with your personal life, I just wanted you to know that I care and am always here if you need a friend. P.S. One of my babies was my son Ryan who is 20 years old now. My other baby was my furry son Coby (my sheltand sheepdog). I had to put him to sleep two years ago-He was only 10 years old. He had lupus and was very sick. It broke my heart, so I got another furry child. Her name is Sarah and she is a rescue dog. She is a big love and I'm crazy about her. Well, I hope you don't mind me talking about this, I just wanted you to know I cared. Hope you are doing okay and have a good night.:hug: