Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-30-2013, 06:56 PM #1
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Quote:
Originally Posted by RSD RENEE View Post
Tessa, YOU ARE SO NOT WORTHLESS. Please don't feel that way. It sounds like you have a wonderful husband and two great furry kids in your life. And you are such a caring and supportive person. And you are a survivor, because you manage to keep going and keep a sense of humor in spite of all you're going through. So I hope you don't ever feel like that again. I know it's hard, I've felt that way myself too at times, but I'm trying to focus on the positive things like you told me you try to do. You are very special and don't ever forgot it lady! Hope you have a great day my friend.
Thank you RSD Renee - I appreciate the kind words. Personally I think we all suffer from this feeling off and on.. who wouldn't when after living a normal life suddenly we face great difficulties in doing even the simplest tasks. It is okay to have sorrow for what once was, as long as you don't "stay there" so this is where my goals and aspirations come in to play. Trying to create and reach new goals even though they are far different from the kind of goals I had before. Look up, move forward and reach out.. my motto!

I will try not to feel that way again.. but if I do I promise to remember and think about the encouragement you have given me today, YOUR KINDNESS is very much taken to heart. I'm so glad you joined this group - it is obvious you truly care about others!

Big hugs back.. ah ha this is the best kind of HUG... they don't even hurt YIPPEE for iHugs.. they rock
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Old 09-30-2013, 09:29 PM #2
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LOL - "iHugs" I call them "virtual hugs" on another board, but I think I like iHugs better

I pretty much agree with everything here - music, family, animals, tv, and lidoderm patches when I get really focused pain in a small area. I guess, as I think about it, I would summarize it as "love and beauty" things...

Here's something that I don't think I saw yet - flowers. Since I moved from California to Arizona (a place I've always hated, unfortunately, but it couldn't be helped), I've discovered that I need flowers. They just comfort me with their beauty. Also, an ocean "sleep sound" is really helpful to me at night. And it can't be just ANY ocean sound - I looked and looked for the right one - it had to not have too much of a change in volume, or it would jerk me awake just when I was nodding off with a WHOOSH of the waves coming in. I like the "Naturespace" app, and the "Cumulous Aquae" ocean sound - ONLY that one. The other ocean sounds are just too disruptive. It gently rocks me to sleep, and when I can't sleep, it still soothes me and reminds me of the home I love.

I miss my dog SO much We had such a wonderful dog - a big, lovely mutt we picked up wandering around the streets and had for 14 years. He passed away just a few months ago ... we decided it was time for him to be out of his pain, and took him to the vet's, and I laid down on the floor with him and cuddled with him as I had so often on my bad pain days, and he passed away in my arms, next to my heart. My husband is more concerned about not looking weird and didn't want me to lay down on the floor at the vet's, but I didn't care - I wanted his last memories to be comfortable and loving, so I did it. God, I miss him so much ... dogs are so special.

Music is also very important to me. I play the harp, when I can. It's really a lovely instrument; I love how you embrace it and hold it next to your heart as you play and feel the music in your body.

A good movie or tv show is a wonderful distraction, as are books late at night when I can't sleep. And family is such a blessing, although since we moved here, we're having so many family issues, sadly. The kids and I get along great, but we moved very close to a lot of my husband's family, and unfortunately ... well, it's usually not so good to move really close to either family, and it's really hurt our family I just found a good counselor, though, and started seeing her last week. My daughter wants to see her, too, so we'll start her up this week.

Anyway, good thread! and interesting that we have similar things that help.
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RSD ME (10-03-2013), zookester (09-30-2013)
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