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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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I am so proud of you for getting out!!! Not once but twice.. ![]() ![]() ![]() ![]() |
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"Thanks for this!" says: | RSD ME (09-29-2013) |
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Thanks Tessa. You gave me the inspiration to do it. It wasn't easy, because I'm so out of shape, but it did indeed boost my spirits. Mentally and physically. Thanks again for the support and great advice! And congrats on the Seahawks awesome game today! (at least one of our teams still remembers how to play football) lol. I hope you have a good night.
P.S. You rock too! |
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"Thanks for this!" says: | zookester (09-30-2013) |
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My piano and cello
![]() Also takes me away from my place and time just that little bit - it's always better, for a little while at least... "If music be the food of love, play on..." William Shakespeare. King of Quotes. Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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My sons brats abd books
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![]() Have you played since you were a youngster? And the Cello.. wow! |
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"Thanks for this!" says: | Brambledog (09-30-2013) |
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My pets too help me a great deal they always seem to know how to find a way to make me smile even when I am hurting so bad. One of my dogs actually knows before hand when Iam going into a flare or if my oxygeon is dropping before I do, she starts getting sick so then I know to check my vitals and know somthings wrong. I also love art and try to keep my hands busy, I was a pastry chef so I like making edible flowers and doing paintings, sewing ect. Then I do alot of puzzles whether regular puzzles or word games just to keep my mind going.
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#7 | |||
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It is amazing how much joy our furry friends can bring us! I have 2 dogs myself and like you, I smile and sometimes even giggle at the silly things they do. So glad yours alert you to pending trouble - that is awesome!! My husband and I also started doing puzzles together. We have a designated table set up with one we are working on, this makes it easy to stop at any time and put a few pieces in. For me it is a great distraction even if only for a few minutes when pain is skyrocketing! ![]() Thank you for taking the time to share - I have a few more ideas of things I can try now. Have a great day! Tessa |
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![]() I've played since I was young, but without any lessons or training so I've not reached any cosmic level. It's my bolthole, my sanctuary, and my saving on many occasions. Music really can soothe your soul. And if you are making it, no matter what the level, it is always powerful and magical. Initially the exercises will probably seem a little repetitive if you haven't played before, but try to see them as a kind of physio for your pain - I still do scales and arpeggios as finger/hand exercises, and that repetition allows you to lose yourself in them. I find that brilliant pain relief. Let me know how you get on with your first lesson - it'll be great to hear your reaction to it! I hope you fall in love and lose your heart a little to it... Do you have your own piano? If not, try to get one ASAP - you can get a second-hand (pre-loved ![]() Interestingly, I am about to have my first ever formal cello lesson next weekend! I've had my cello (Edward ![]() New things are always good I think. They involve your brain and emotions so much that it pushes your pain away just a bit. Sounds like a deal to me ![]() Good luck, Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | RSD ME (09-30-2013) |
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#9 | |||
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Thank you!! I took a few lessons when I was around 8 yo. I loved it back then and since have always been drawn to them. So when I was trying to find things I could do to keep my sanity during the winter months and my mind occupied.. I thought of how wonderful it would be to learn to play. My only worry is how long I could tolerate sitting to actually play. My hope is that I will lose myself enough in it that I won't think about the pain ![]() Amazing that you taught yourself!!! You must be one smart lady ![]() I love that you named your Cello "Edward" that is funny! Oh have fun at your lesson and do let me know how it goes. ![]() I think it is really important with this disease to find or create new passions so that depression and self worth doesn't get a chance to take hold! I truly appreciate all who take the time to respond. Shoot, it helps us learn a few things about each other.. a bonus! My other goal this winter is to learn sign language (Vrae inspired). I really think that will be great therapy and who knows someday it could become quite useful. Have a fantastic day Bram, Tessa |
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"Thanks for this!" says: | Brambledog (09-30-2013), RSD ME (09-30-2013) |
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#10 | |||
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Well, I am not as exciting as you guys are. We do not have any pets, nor can I play any instrument
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