Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-29-2013, 07:16 PM #1
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Question What helps you?

Hello all,

I wanted to ask everyone about things they have found helpful in managing pain on a daily basis. I'm not asking about medications or therapeutic remedies offered by our doctors or PM's; what I am really asking about is what have you found helpful in your own journey to fight back the pain & promote mental health? I thought maybe this might be helpful for all of us in case there are things we just hadn't thought about.

I'll start it off by offering what is helpful to me: Upbeat music while riding my indoor recumbent for exercise.. my current favorite station on Pandora is "Athleta Power to the she" during my ride.

Next up..
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Old 09-29-2013, 10:14 PM #2
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My pets. I have two rescue dogs and a cat. They give me a reason to get out of bed in the morning so that I can feed them, let them out and play with them. And today I took my dogs for a short walk with me (one at a time). I also like watching football with my husband (and son when he comes to visit us), when my team's not loosing. (That would exclude today.)lol.
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Old 09-29-2013, 10:22 PM #3
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Originally Posted by RSD RENEE View Post
My pets. I have two rescue dogs and a cat. They give me a reason to get out of bed in the morning so that I can feed them, let them out and play with them. And today I took my dogs for a short walk with me (one at a time). I also like watching football with my husband (and son when he comes to visit us), when my team's not loosing. (That would exclude today.)lol.
I am so proud of you for getting out!!!


Not once but twice.. . Did it boost your spirits?

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Old 09-29-2013, 10:30 PM #4
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Thanks Tessa. You gave me the inspiration to do it. It wasn't easy, because I'm so out of shape, but it did indeed boost my spirits. Mentally and physically. Thanks again for the support and great advice! And congrats on the Seahawks awesome game today! (at least one of our teams still remembers how to play football) lol. I hope you have a good night.
P.S. You rock too!
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Old 09-30-2013, 03:11 AM #5
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My piano and cello

Also takes me away from my place and time just that little bit - it's always better, for a little while at least...

"If music be the food of love, play on..."
William Shakespeare. King of Quotes.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 09-30-2013, 05:37 AM #6
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My sons brats abd books
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Old 09-30-2013, 08:09 AM #7
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Default Music!!

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Originally Posted by Brambledog View Post
My piano and cello

Also takes me away from my place and time just that little bit - it's always better, for a little while at least...

"If music be the food of love, play on..."
William Shakespeare. King of Quotes.

Bram.
Oh Bram.. you made my day!! I just signed up to start Piano lessons next week, I am so excited! I decided learning to play the piano would be a great way to distract myself

Have you played since you were a youngster?

And the Cello.. wow!
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Old 09-30-2013, 11:43 AM #8
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Default My dog &. Cat.

Quote:
Originally Posted by zookester View Post
Hello all,

I wanted to ask everyone about things they have found helpful in managing pain on a daily basis. I'm not asking about medications or therapeutic remedies offered by our doctors or PM's; what I am really asking about is what have you found helpful in your own journey to fight back the pain & promote mental health? I thought maybe this might be helpful for all of us in case there are things we just hadn't thought about.

I'll start it off by offering what is helpful to me: Upbeat music while riding my indoor recumbent for exercise.. my current favorite station on Pandora is "Athleta Power to the she" during my ride.

Next up..
My little Toto (a Yorky with 2 in. Long legs) follows me like a lamb from room to room. She's 10 yrs old & loves me & I even feel like she feels sorrow for me when I'm I'm feeling bad. My cat loves me too but takes a second seat to the
"Dog." Toto thinks she's human & chases "Emily" away! Lol.
My other savior is Lidoderm patches. You have to ask your Doc. For them. They are the only patches that I could tolerate. They feel a little cool ( eeeuw)
When you first put them on (for 3days) but really help pain or coldness.
I also I use electric pads under my body in bed & electric blanket on top under my spread.
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Old 09-30-2013, 12:56 PM #9
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Originally Posted by Glassbee View Post
My little Toto (a Yorky with 2 in. Long legs) follows me like a lamb from room to room. She's 10 yrs old & loves me & I even feel like she feels sorrow for me when I'm I'm feeling bad. My cat loves me too but takes a second seat to the
"Dog." Toto thinks she's human & chases "Emily" away! Lol.
My other savior is Lidoderm patches. You have to ask your Doc. For them. They are the only patches that I could tolerate. They feel a little cool ( eeeuw)
When you first put them on (for 3days) but really help pain or coldness.
I also I use electric pads under my body in bed & electric blanket on top under my spread.
Thank you for sharing!! Glad you have your little lamb following you about Our furry friends really do impact our lives in positive ways.

And the Lidoderm - yes, that helps me too but I am realizing more and more that the the things that help me the most doctors cannot provide. No medication or treatment can help me when I am feeling worthless or sad that all comes from things in and around my life. Even just 5 min of joy/pleasure a day does wonders for the spirit!

My daily goal is to find something new to bring me joy so that the things I can longer do don't bring tears to my eyes, and the new joys remind me that I am a survivor!
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Old 09-30-2013, 02:44 PM #10
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Thank you for sharing!! Glad you have your little lamb following you about Our furry friends really do impact our lives in positive ways.

And the Lidoderm - yes, that helps me too but I am realizing more and more that the the things that help me the most doctors cannot provide. No medication or treatment can help me when I am feeling worthless or sad that all comes from things in and around my life. Even just 5 min of joy/pleasure a day does wonders for the spirit!

My daily goal is to find something new to bring me joy so that the things I can longer do don't bring tears to my eyes, and the new joys remind me that I am a survivor!
Tessa, YOU ARE SO NOT WORTHLESS. Please don't feel that way. It sounds like you have a wonderful husband and two great furry kids in your life. And you are such a caring and supportive person. And you are a survivor, because you manage to keep going and keep a sense of humor in spite of all you're going through. So I hope you don't ever feel like that again. I know it's hard, I've felt that way myself too at times, but I'm trying to focus on the positive things like you told me you try to do. You are very special and don't ever forgot it lady! Hope you have a great day my friend.
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