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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Hello all,
I wanted to ask everyone about things they have found helpful in managing pain on a daily basis. I'm not asking about medications or therapeutic remedies offered by our doctors or PM's; what I am really asking about is what have you found helpful in your own journey to fight back the pain & promote mental health? I thought maybe this might be helpful for all of us ![]() I'll start it off by offering what is helpful to me: Upbeat music ![]() Next up.. |
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"Thanks for this!" says: | RSD ME (09-29-2013) |
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My pets. I have two rescue dogs and a cat. They give me a reason to get out of bed in the morning so that I can feed them, let them out and play with them. And today I took my dogs for a short walk with me (one at a time). I also like watching football with my husband (and son when he comes to visit us), when my team's not loosing. (That would exclude today.)lol.
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"Thanks for this!" says: | zookester (09-29-2013) |
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#3 | |||
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Quote:
I am so proud of you for getting out!!! Not once but twice.. ![]() ![]() ![]() ![]() |
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"Thanks for this!" says: | RSD ME (09-29-2013) |
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#4 | ||
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Thanks Tessa. You gave me the inspiration to do it. It wasn't easy, because I'm so out of shape, but it did indeed boost my spirits. Mentally and physically. Thanks again for the support and great advice! And congrats on the Seahawks awesome game today! (at least one of our teams still remembers how to play football) lol. I hope you have a good night.
P.S. You rock too! |
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"Thanks for this!" says: | zookester (09-30-2013) |
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#5 | ||
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My piano and cello
![]() Also takes me away from my place and time just that little bit - it's always better, for a little while at least... "If music be the food of love, play on..." William Shakespeare. King of Quotes. Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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#6 | ||
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My sons brats abd books
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#7 | |||
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![]() Have you played since you were a youngster? And the Cello.. wow! |
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"Thanks for this!" says: | Brambledog (09-30-2013) |
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#8 | ||
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My pets too help me a great deal they always seem to know how to find a way to make me smile even when I am hurting so bad. One of my dogs actually knows before hand when Iam going into a flare or if my oxygeon is dropping before I do, she starts getting sick so then I know to check my vitals and know somthings wrong. I also love art and try to keep my hands busy, I was a pastry chef so I like making edible flowers and doing paintings, sewing ect. Then I do alot of puzzles whether regular puzzles or word games just to keep my mind going.
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#9 | |||
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It is amazing how much joy our furry friends can bring us! I have 2 dogs myself and like you, I smile and sometimes even giggle at the silly things they do. So glad yours alert you to pending trouble - that is awesome!! My husband and I also started doing puzzles together. We have a designated table set up with one we are working on, this makes it easy to stop at any time and put a few pieces in. For me it is a great distraction even if only for a few minutes when pain is skyrocketing! ![]() Thank you for taking the time to share - I have a few more ideas of things I can try now. Have a great day! Tessa |
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#10 | ||
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![]() I've played since I was young, but without any lessons or training so I've not reached any cosmic level. It's my bolthole, my sanctuary, and my saving on many occasions. Music really can soothe your soul. And if you are making it, no matter what the level, it is always powerful and magical. Initially the exercises will probably seem a little repetitive if you haven't played before, but try to see them as a kind of physio for your pain - I still do scales and arpeggios as finger/hand exercises, and that repetition allows you to lose yourself in them. I find that brilliant pain relief. Let me know how you get on with your first lesson - it'll be great to hear your reaction to it! I hope you fall in love and lose your heart a little to it... Do you have your own piano? If not, try to get one ASAP - you can get a second-hand (pre-loved ![]() Interestingly, I am about to have my first ever formal cello lesson next weekend! I've had my cello (Edward ![]() New things are always good I think. They involve your brain and emotions so much that it pushes your pain away just a bit. Sounds like a deal to me ![]() Good luck, Bram.
__________________
CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | RSD ME (09-30-2013) |
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