FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
10-01-2013, 08:52 PM | #1 | |||
|
||||
Member
|
Come out come out wherever you are! Sending lots of large gentle hugz
__________________
Illegitimi non carborundum For he shall give his angels charge over thee, to keep thee in all thy ways. psalms 91:11 |
|||
Reply With Quote |
10-02-2013, 03:02 AM | #2 | ||
|
|||
Senior Member
|
Yes, do let us know you're ok Vrae if you're able to get on..... I know things have been difficult recently (understatement of the millennia )
Thinking of you my friend Bram.
__________________
CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
||
Reply With Quote |
10-02-2013, 01:04 PM | #3 | ||
|
|||
Senior Member
|
Hi Vrae. I hope you're okay and feeling better too, and hope to hear from you soon.
|
||
Reply With Quote |
"Thanks for this!" says: | Vrae (10-08-2013) |
10-02-2013, 01:07 PM | #4 | |||
|
||||
Member
|
I miss you too Vrae!
|
|||
Reply With Quote |
"Thanks for this!" says: | Vrae (10-08-2013) |
10-02-2013, 01:29 PM | #5 | |||
|
||||
Member
|
Vrae,
I do hope you are busy trying to tie up the loose ends wit your business and not in so much pain that you haven't been able to check in!! We are all concerned for you. Sending you the biggest iHug EVER Tessa |
|||
Reply With Quote |
"Thanks for this!" says: | Vrae (10-08-2013) |
10-06-2013, 01:13 PM | #6 | |||
|
||||
Member
|
Please Please let us know you are ok. Praying hard your pain is better.
__________________
Illegitimi non carborundum For he shall give his angels charge over thee, to keep thee in all thy ways. psalms 91:11 |
|||
Reply With Quote |
"Thanks for this!" says: | Vrae (10-08-2013) |
10-08-2013, 09:07 AM | #7 | |||
|
||||
Member
|
Oh wow! You guys/gals are AMAZING!! Thank you SO MUCH for your thoughtful concern. How lucky am I that I have place to go where so many care so much?! What a blessing you all are. I miss you too!
It's true, like all of us I am wrestling with symptoms, but it's not altogether the reason I haven't been on. I am (as zookester mentioned below) just trying to get this darn business of mine put to bed. The video edit I am working on is HUGE and I am only good enough to sit a few short hours a day and then there's kids, house, and all of those domestic goddess type things (that weren't really getting done anyway ), and with symptoms raging, I just haven't had the time, or have had the time and am in too much pain to participate. Hang in there with me if you will. I'm coming back. I have had a ray of sunshine that I will tell you all about soon. I have lots of questions about it, but I M-U-S-T E-D-I-T .... lol.. ug! Or at least that's what i keep telling myself. I would like to be finished before the holiday's and before winter really sets in. I hope that you all are doing okay, or better than okay. I am really touched that you all reached out! I look forward to chatting with my friends here real soon. Care take!!
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
|||
Reply With Quote |
10-08-2013, 01:37 PM | #8 | ||
|
|||
Senior Member
|
LOL Vrae
Glad you are ok. Haven't replied to your PM yet cos it's been a mental day, rushed off my feet, and have to make an urgent phone call.....buti will sit down and give you my undivided attention later! Take care gal x Bram.
__________________
CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
||
Reply With Quote |
"Thanks for this!" says: | Vrae (10-08-2013) |
10-08-2013, 01:46 PM | #9 | |||
|
||||
Member
|
Glad you are ok too Vrae! Good luck with the video edit!
|
|||
Reply With Quote |
"Thanks for this!" says: | Vrae (10-08-2013) |
10-16-2013, 11:49 PM | #10 | |||
|
||||
Member
|
I lay here tonight in so much pain. Man am I struggling in every way. Everything, every single thing is so hard to do right now. I get up every day trying to get to my goal of edit complete.. delivery of this final project. I’ve made some good stride and now I am bottoming out. I am pulled between being an editor, accountant, mom, wife, housekeeper, counselor, nurse (for them and me), educator, chef, and so on. I work from home and there has always been (but it seems worse now) a lack of understanding that when you work from home, you really are working. But always I am interrupted time and again by my loved ones. I’ve explained to them countless times... I swear they’re deaf.
I get up early, put my feet on the ground hoping I can make my ankles/feet/legs work. Stumble to coffee, and boot the machines. Yes, all three of them (and that’s just in my area of the studio). I am surrounded by very large monitors and tasks to be done. Push Vrae, push, I say to myself. Get this done and out of your life. It is the most frustrating thing because I cannot work but until about noon and then I get this overwhelming desire to sleep. It’s like I want to do a face plant right into my desk! I feel like I’m just spinning my wheels. Four or so hours a day is NOT cutting it (literally). I struggle to sit for that long. My legs start Charlie-horsing and make me jump from my chair, scrambling to massage and work it free of its anger with me. My upper back hurts so bad that even to take a deep breath hurts. My arms hurt, my hands hurt. It ALL friggin hurts. <sigh> Afternoons I’m to get kids from school. Driving is becoming a big issue. My feet and legs sear with pain. Get home and look at a sink full of dishes, and that’s pretty much all I do, look at them and move on. I war with myself because my body is screaming lay down, try and get warm and let my body rest. Days go by and I can’t stand long enough to cook, clean, or much of anything else. Winter is starting to show its self in the Mile High City. It hurts, it hurts, it hurts!!! I just need one more weather front for my life to be complete. It got down to 27° last night. Snow tomorrow and Friday night, joy! This is when my limbs turn to ice and to get warm feels almost impossible. God I wanted to be done with this project already! I have many weeks still ahead of me. At this rate, hell it could be next year… ug! My arm is giving out, so I will quit my moaning and complaining for now. Ps. I have read many of the recent posts. I know that many of us are struggling with these same issues right now, so I know I am far from alone. I miss my time on here and look forward to catching up with everyone soon. I think of you all often. Thanks for letting me vent. Take care!
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
|||
Reply With Quote |
"Thanks for this!" says: |
Reply |
|
|