Thanks Artist. I did read the Dutch Guidelines, I quite liked it, had plenty of useful data.

But this whole subject brings up an interesting point... who IS the leading expert these days? And how does one come to be considered it? I have always wondered that, on any subject, not just rsd, lol.

Ha! Well, you may get a few disagreements regarding that last question - if you look through the back posts you'll see little skirmishes breaking out occasionally

BTW - in that last Hooshmand puzzle: "What are the reasons for failure of treatment of RSD?" (then he says: or rather, which are the most dangerous RSD treatments? which I think is a completely different question....but anyway) that question implies that there are successful treatments for RSD.

Are there? If anyone knows the answer to *that* question, please post it here double-quick

all the best.

DEFINETLY!! I'd love a cure!!! Then Kat's but would be kicked right out of the picture :P!

Anyway. I took gabapentin for about a year - no major difference on the pain scale and also made me put on weight. I was a US 6/8 (UK 10/12) before I got this... and with neurontin I gained weight to a point of being US 12/14/16 (UK 16/18/20). It has taken SO long to get the weight down and off again.

I have tried other things like Lyrica, Topomax etc - not sure they worked brill - (I was on large doses of MST etc at the same time).

About RSD specialists.. I don't think there is one. Everyone is individual in this disease and some drs specialise in some procedures which really help some RSDers but not others and vice versa- I guess it depends what you find helps. Some people are really helped from Surgery (SCS type things) or meds or psychological coping skills, or anesthetic stuff (drug pumps/ blocks) etc etc etc...

In 10 or 20 years time I'm sure they will have come up with many types of RSD and hopefully discovered the best symptom reduceer/ CURE for each type.

Love ya

Froggsy xxxxxxxxxxxxxxx

My uncle committed suicide on while on neurontin. My aunt is GREATLY OPPOSED to the use of Neurontin.

I was put on nortryptyline - that was a BAD experience.