Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-05-2013, 11:30 AM #1
anon6715
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And I'm a touch further down in London.

My CRPS developed following wrist surgery in December 2012, so this is all still pretty new to me. I have CRPS in my right arm, primarily my hand wrist and shoulder.

I'm afraid I don't have any advice. I did have a surgical procedure on my right hand in June 2013 to help increase my range of motion. I had a manipulation under anaesthesia and a release of the MCP joint. Basically, the surgeon said that the tissue above the knuckle in my little finger was stuck, preventing movement of the joint. He used a small needle to slice the tissue a bit. He also manipulated my hand and wrist and injected steroid into my hand. I was very sore after this but it did improve my ROM. It did not cause a worsening or spread of the CRPS but I know it could have done. I was lucky. I did take vitamin C daily before and after the procedure. I have no idea if this helped but it certainly didn’t hurt.

Best of luck with whatever you decide.

Kim
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Old 10-06-2013, 02:41 AM #2
flora99 flora99 is offline
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Hi Kim
Thankyou for sharing your experiences with me!
You were v brave ,and im so pleased the surgury helped you and you didnt get spread!
The vitamin C thing sounds good.
I useto take vit C every day but had to stop because it irritated my gastric problems because its basically an acid.
I have heard of a gentle buffered version so i could try that.Ive never bothered to take it as my reflux is so bad that when its better i dont want to risk a flare up,but if it controls the spread ,and i take it for a short time before and after my proceedure if i go ahead.
Flora99 (kim)
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Old 10-06-2013, 02:26 AM #3
flora99 flora99 is offline
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Hi Brambledog
Thats interesing your in Gloucetershire i use to live in Malvern,and know it well.
Dont apologise for being late you are a busy lady helping other people too!
I still havent decided to go ahead with the proceedure yet.I have another session of councelling next week,which i feel might help.
I am mindful of what everone has said re presenting myGP with as much info as poss,which i hope to do when i see her for an update fairly soon.
Yes i know i must try not to get uptight and upset because it will make my RSD worse,but its so hard to do that while im keeping thoughts about what i face in my concious mind
I normally coap by blotting it out as much as possible.
Too right about dont ask dont get!!
Big Hug
Flora
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"Thanks for this!" says:
Brambledog (10-06-2013)
Old 10-06-2013, 02:28 AM #4
Kevscar
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If you e-mail me RSDFighter@hotmial.co.uk I will seend you the protocol just as it is from the site you can then print it out to take.
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