Hi Cinders999
Yes i will present my GP with these protocols.Its good to make them aware .
Was good to get your feedback!
It is a good idea to write to my MP to raise awareness on the problems we all face!
Big gentle hug
Love
Flora

Hi Flora

Sorry, I'm late to this thread! I started on a post to you two days ago and lost it all when my iPad decided to have a wobbly and crashed. Lol. Not a happy bunny...

I'm down in Gloucestershire. My CRPS started in my left knee after an arthroscopy, and has since spread to my whole left side in the two years following. I'm only taking low dose Lyrica at the moment (50 mg twice a day) and the rest is pain management stuff, which works better than the meds right now

Good luck if you do have to have any procedure. It's not fun, but handled right it doesn't have to mean spread or worsening symptoms afterwards. Just be pleasant about it and give your docs the guidance. As my mum says, if you don't ask, you don't get!

Take care and keep calm

Bram.

And I'm a touch further down in London.

My CRPS developed following wrist surgery in December 2012, so this is all still pretty new to me. I have CRPS in my right arm, primarily my hand wrist and shoulder.

I'm afraid I don't have any advice. I did have a surgical procedure on my right hand in June 2013 to help increase my range of motion. I had a manipulation under anaesthesia and a release of the MCP joint. Basically, the surgeon said that the tissue above the knuckle in my little finger was stuck, preventing movement of the joint. He used a small needle to slice the tissue a bit. He also manipulated my hand and wrist and injected steroid into my hand. I was very sore after this but it did improve my ROM. It did not cause a worsening or spread of the CRPS but I know it could have done. I was lucky. I did take vitamin C daily before and after the procedure. I have no idea if this helped but it certainly didn’t hurt.

Best of luck with whatever you decide.

Kim

Hi Kim
Thankyou for sharing your experiences with me!
You were v brave ,and im so pleased the surgury helped you and you didnt get spread!
The vitamin C thing sounds good.
I useto take vit C every day but had to stop because it irritated my gastric problems because its basically an acid.
I have heard of a gentle buffered version so i could try that.Ive never bothered to take it as my reflux is so bad that when its better i dont want to risk a flare up,but if it controls the spread ,and i take it for a short time before and after my proceedure if i go ahead.
Flora99 (kim)
X

Hi Brambledog
Thats interesing your in Gloucetershire i use to live in Malvern,and know it well.
Dont apologise for being late you are a busy lady helping other people too!
I still havent decided to go ahead with the proceedure yet.I have another session of councelling next week,which i feel might help.
I am mindful of what everone has said re presenting myGP with as much info as poss,which i hope to do when i see her for an update fairly soon.
Yes i know i must try not to get uptight and upset because it will make my RSD worse,but its so hard to do that while im keeping thoughts about what i face in my concious mind
I normally coap by blotting it out as much as possible.
Too right about dont ask dont get!!
Big Hug
Flora

If you e-mail me RSDFighter@hotmial.co.uk I will seend you the protocol just as it is from the site you can then print it out to take.