Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-05-2013, 05:25 AM #2
Brambledog Brambledog is offline
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Location: England
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Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Well....

I'm not sure on the research tbh, but a lot of scientists have admitted that there's very little high quality research being done into CRPS, so it's difficult to know. There are hints at all sorts of links including genetic, but just because it hasn't been properly looked at yet doesn't mean much. I was reading a paper the other day that mentioned that there was some evidence to suggest a genetic link, and a predisposition to developing CRPS in the children of a parent suffering the disease.

My father has neurological problems in his feet (he had surgery as a young man) which have been getting worse with age. He has had nerve conduction studies that showed his nerves are nor working as they should - however, it is not CRPS (he mentioned to his neurologist about me having it), but his doc was interested that both he and I have persistent neuro issues that are resistant to treatment or pain meds, and admitted it might not be a complete coincidence (he'll have to be careful talking loose like that, he could be struck off ).

So yes, if I'm honest I think there's a fair chance of a genetic component that puts us at greater risk of developing it. I have coeliac disease, another auto-immune condition, and that's been proven to be genetic - so one of my parents has it (we're not sure which, probably my dad again lol - he won't be tested). As CRPS seems to be auto-immune as well, maybe there is that link as well...

Oh yes, and I am O-negative, which is rare-ish too.

Anyhow...just my opinions

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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