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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-06-2013, 09:11 PM #1
Kevscar
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Keith Orsini AmericanRSDhope has been runnning this for a number of years, Unfortunatly most ameicans have never heard of it
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edever34 (10-07-2013), RSD ME (10-08-2013)
Old 10-06-2013, 09:15 PM #2
Allanira Allanira is offline
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Nice we need to get more people informed in ALL countries especially the drs. I already posted a video on my facebook page. I am going to try and get all the people I know informed and educated so they know if I hurt its not them its me.
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edever34 (10-07-2013), RSD ME (10-07-2013)
Old 10-07-2013, 03:36 AM #3
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Yes I knew, and I posted something on my FB page last week which a few friends have copied. We just keep plugging away people!

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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edever34 (10-07-2013), RSD ME (10-07-2013)
Old 10-07-2013, 01:34 PM #4
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Yes, i echo what Kevscar said. Go to RSDHope.org and they have awareness ribbons etc. and pamphlets. I have given ribbons to my Dr.'s and have given pamphlets to my SSDI Attorney. It's a great site for all kinds of articles.

This disease is rare so "walks" etc. are difficult to organize. Too bad being independantly wealthy does not come with this disease, I think folks like us could gather and go out and really make a difference.
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Old 10-07-2013, 01:40 PM #5
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Quote:
Originally Posted by AZ-Di View Post
This disease is rare so "walks" etc. are difficult to organize. Too bad being independantly wealthy does not come with this disease, I think folks like us could gather and go out and really make a difference.
Oh that is sooooooo true!!!!! Hang on, let me think about that for a second or ten.......

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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