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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-09-2013, 03:16 PM | #21 | ||
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And Just One More...
Love and Friendship BY EMILY BRONTĖ Love is like the wild rose-briar, Friendship like the holly-tree— The holly is dark when the rose-briar blooms But which will bloom most constantly? The wild rose-briar is sweet in spring, Its summer blossoms scent the air; Yet wait till winter comes again And who will call the wild-briar fair? Then scorn the silly rose-wreath now And deck thee with the holly’s sheen, That when December blights thy brow He still may leave thy garland green. |
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"Thanks for this!" says: | SloRian (10-11-2013) |
10-09-2013, 03:51 PM | #22 | ||
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Both of those are beautiful Renee, both in different ways...
Thanks Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | RSD ME (10-09-2013) |
10-10-2013, 11:26 PM | #23 | |||
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I'm sick of editing/working... I wanna play! Although I'm not talented enough to create my own, so I will share one instead.
The work you have all shared is lovely. Bram you are so talented. Don't You Quit When things go wrong, as they sometimes will, When the road you're trudging seems all uphill, When the funds are low and the debts are high, And you want to smile, but you have to sigh, When care is pressing you down a bit- Rest if you must, but don't you quit. Life is queer with its twists and turns, As every one of us sometimes learns, And many a fellow turns about When he might have won had he stuck it out. Don't give up though the pace seems slow - You may succeed with another blow. Often the goal is nearer than It seems to a faint and faltering man; Often the struggler has given up When he might have captured the victor's cup; And he learned too late when the night came down, How close he was to the golden crown. Success is failure turned inside out - The silver tint in the clouds of doubt, And you never can tell how close you are, It might be near when it seems afar; So stick to the fight when you're hardest hit - It's when things seem worst that you must not quit. ~Ralph Acosta
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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"Thanks for this!" says: | Brambledog (10-11-2013), freebird36 (11-11-2013), RSD ME (10-11-2013), SloRian (10-11-2013), Sylmeister (10-11-2013) |
10-11-2013, 03:34 AM | #24 | ||
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Love that poem, but never knew who it was by! Thanks Vrae, that was lovely
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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10-11-2013, 08:24 AM | #25 | ||
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Sorry guys, this one's not that chirpy, but today it's how I feel, and writing it helped a bit although it did make me shed the odd tear.
Hope you are all doing ok out there. This one's for you Bram. Not My Best Day If I crane my head a little, I can see a green stand of trees. I know beyond that lies the town, the rivers, life and such bustle. My car is crouching on the drive, and sits waiting for my key Sunshine moves the shadows, and crisply on the lawn leaves rustle. Autumn now bring chills and draughts, they scare me like a dragon crouched. My blanket here is soft and warm, comforting like chocolate, Whispering it's safer here, reassuring me, my dog slouched Across the other sofa, makes me smile, her happy noises soft. The tv there is on of course, but nothing on it interests me Not even real people's lives, but something darker like grey skies Or that noise behind you in the darkness. It's hard to watch, to see Life as it could be, as it was, as it might have been had fate smiled. It's grey now outside. Grey and damp and chilled like the hope it replaces. It's hard to keep going each day, to smile again and face alone; To stop that silent scream escaping, teaching those judging faces About this thing, this pain, this beast, that gnaws upon my very bones Both day and night. Night and day merge together, tied by pain like wire Cutting through flesh. Try to explain, see confusion, even boredom there; See dark the yawning*cloud their eyes behind the sympathetic smile. They don't see, they can't. Who could? Except you others who know and share.* You share it all, you see, that pain, the searing tears upon your cheeks. You know, you see, that black black depth within us where we go to hide When it is bad, beyond belief of what should be endured. You seek The same relief, that gasping breath of life again, your eyes wide. No wonder we all hope and pray and wish for the impossible. Screens flickering with searches and dreams, fingers touch and burn there, On keys to keep the link between loneliness and understanding. A lifeline when being drowned in pain becomes just too much to bear. I cannot see those pseudonyms, or know their lives and faces true, But like the air that fills my lungs, I see them in my heart, they hold My hand in darkness and fight with me against the fear. And the blue Streak of dawn brings hope of sunlight, warmth at last to chase the cold. Thank you all. Brambledog c.2013
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | anon6715 (10-12-2013), AZ-Di (10-15-2013), Djhasty (10-14-2013), freebird36 (11-11-2013), Jenna Delaney (12-09-2013), RSD ME (10-11-2013), SloRian (10-12-2013) |
10-12-2013, 12:02 PM | #26 | ||
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I cut and pasted the poem below.
I found it on the internet, but the author is unknown. I hope you like it. PLEASE UNDERSTAND Please understand that being sick doesn't mean I'm not still a human being I don't feel well often times and I might not seem like great company, but I'm still me stuck inside this body. I still worry about my kids and work and my family and friends, and I'd like to hear you talk about yours too. Sometimes I want to talk about my illness sometimes I don't, so please don't roll your eyes when I talk about my pain and please don't pressure me to "get it off my chest" when I just want to pretend it doesn't exist. Please Understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. I may be tired I may be in pain. I may be sicker than ever. Please, don't say, "Oh, you're sounding better!" as if I'm healed. I am not sounding better, I am sounding happy. Tomorrow I may sound worse again. Please understand that being able to function for an hour doesn't necessarily mean that I can keep it up all day. Doing everyday things, that everyone else takes for granted, exhausts my resources and I need to recover. Imagine an athlete after a race. They couldn't repeat that feat right away either. With a lot of diseases you're either paralyzed or you can move. With this one it gets more confusing. Maybe today, I can handle work and home, tomorrow it may be one or the other but not both. There is actually a name for this it's called postactivity payback and it sucks. So, please try to keep in mind that I don't function like everyone else and just because I can do it today doesn't mean I can do it everyday. Please remember that the above paragraph can apply to just about anything, "sitting up", "walking", "thinking", "being sociable", and so on it can apply to everything that requires physical or mental effort. That's what a chronic pain illness does to you. Please understand that chronic illnesses are variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!". If you want me to do something, ask if I can and I'll tell you. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please don't take it personally. Please understand that "getting out and doing things" does not make me feel better, and can often make me seriously worse. Reflex Sympathetic Dystrophy may cause secondary depression (wouldn't you get depressed if you were always in pain and exhausted?) but it is not caused by depression. Telling me that I need some fresh air and exercise is not appreciated and not correct - if I could do it, I would. Please understand that if I say I have to sit down/lie down take these pills now, that I do have to do it right now, it can't be put off or forgotten just because I'm doing something. RSD/CRPS does not forgive. Please understand that I can't spend all of my energy trying to get well. With a short-term illness like the flu, you can afford to put life on hold for a week or two while you get well, But part of having a chronic illness is coming to the realization that you have to spend some energy on having a life now. This doesn't mean I'm not trying to get better. It doesn't mean I've given up. It's just how life is when you're dealing with a chronic illness. I will go about the business of living, but I won't necessarily be happy about it either so please try to understand that there is a reason I'm a little crabby sometimes. I can't just hide in bed with my head under the covers because I don't feel good everyday. But I sure have tried to do just that. Please If you want to, you can suggest a cure to me, but please don't act as if it's going to be my salvation. It's not that I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest something at one point or another. Typically, it's just the same old snake oil in a new package. If there was something that cured, or even helped, people with RSD/CRPS then we'd already know about it. There is worldwide networking (both on and off the Internet) between people with RSD/CRPS, if something worked we would KNOW. I'm happy to hear what you have to offer and if it's something that I haven't heard before, I'll take what you said and discuss it with my doctor. Please understand that getting relief from an illness like this can be very slow if not imposable. People with RSD/CRPS have so many systems in their bodies out of equilibrium, and functioning wrongly, that it may take a long time to sort everything out. Please understand that if I pull away from a touch or a hug. Its does not mean that I am anti-social. Or that I don't like you. It simply means that my body's ability to enjoy touch has changed and I am unable to greet people in a normal mater because of the chronic burning pain that RSD/CRPS causes. I depend on you - people who are not sick for many things. But most importantly, I need you to understand me. |
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10-12-2013, 02:58 PM | #27 | |||
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That one is really good. I've read it before, and I really like it. I was going to try to find it and post here, but you beat me to it! It explains a lot of things very well, IMO. Thanks for sharing it!
I especially liked this: "Please understand that chronic illnesses are variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!". " |
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10-14-2013, 04:05 PM | #28 | ||
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By CRPSSongbird
One day, one moment, one breath Life changed, dreams altered Searing, burning, numb Dread, and fear Dark, and lost I am still here Each day a struggle outcast, and misunderstood Bright pain, black hope shadowed in loss I am still here I still breathe, I still dream changed but still real hurt but not quite healed Other can't see wretched disbelief they can't know But I still feel I'm lost, but resolved broken, but whole Altered, yet steady I am still ME |
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10-14-2013, 04:13 PM | #29 | ||
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Wow Songbird, that was fab!
Thanks so much for sharing that with us....it was so sad, but strong and defiant. I feel a bit like that right now (the painful outcast blackness bit anyway ) time to find my strength again Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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10-14-2013, 04:32 PM | #30 | ||
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I'm sorry your having such a bad day hun! Sorry if it was a bit depressing but sometimes you can feel that way. I just have to remind myself every now and then to think past the pain and limitations and remember me Of course depending on the day easier said than done!
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"Thanks for this!" says: | Brambledog (10-14-2013) |
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