Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-07-2013, 02:28 PM #1
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Default Flu Shot

Is anyone afraid to get a flu shot? I am. I used to always get one until I got RSD. Now I afraid of spread. Has anyone else gotten one after getting RSD and been okay? I'd like to get one, but don't know if I should because of this.
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Old 10-07-2013, 02:41 PM #2
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Originally Posted by RSD RENEE View Post
Is anyone afraid to get a flu shot? I am. I used to always get one until I got RSD. Now I afraid of spread. Has anyone else gotten one after getting RSD and been okay? I'd like to get one, but don't know if I should because of this.
I personally would NOT get a flu shot. Not because I fear spread so much as I know my immune system is weakened already and in a flu shot you are actually being exposed to the virus itself, thus increasing the chances/risk that you could end up with it after the injection. In this case (at least for me) the benefit does not outweigh the risk.

JMO,
Tessa
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Old 10-07-2013, 02:41 PM #3
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Hi Renee! I get the flu shot every year and have for many years. It hasn't caused any spread or problems for me. I am more afraid of getting the flu again then I am of the shot causing spread.
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Old 10-07-2013, 06:17 PM #4
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I have always gotten the flu shot with no problems. I too do not want to get the flu again. Also it is NOT a live virus- that is so false.
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Old 10-07-2013, 07:34 PM #5
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I have always gotten the flu shot with no problems. I too do not want to get the flu again. Also it is NOT a live virus- that is so false.
Thanks Edever for your advice, but I agree with Tessa that a virus, live or not, is a risk that I don't want to take a chance on getting sick from. Being that our immune systems are so compromised because of our rsd, I'd rather endure the flu if I unfortunately happen to get, than take a chance on getting rsd spread from an injection or sick from the virus that it would be putting into my body.
This is just my opinion too. Thanks again though for your kindness and advice.
Take Good Care of Yourself and I hope you have a good night.

Last edited by RSD ME; 10-08-2013 at 08:59 AM.
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Old 10-07-2013, 07:48 PM #6
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Thanks Edever for your advice, but I agree with Tessa that a virus, live or not, is a risk that I don't want to take a chance on getting sick from. Being that our immune systems are so compromised because of our rsd, I'd rather rough the flu if I happen to get.
Take Care.
Several years ago, there were two strains for the flu going around. I had already gotten the flu shot but it only covered one strain...I got the other strain of the flu. I seriously thought I was gonna die. My husband said I looked like death. I NEVER want to go thru that again. They (medical professionals) have said over and over that the flu shot cannot make you sick. If you get the flu shortly after getting the shot, that means you were already exposed to it. Having a compromised immune system could make it harder to get over the flu.

Completely your choice though
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Old 10-07-2013, 07:56 PM #7
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I understand your point of view, but my trust in medical professionals these days is very low. (That's not to say all of them.) (I have drs and lawyers in my family so I need to make this clear so that they don't get angry with me!) The medical professionals I had said that I should try accupunture, and after having those needles put in my body, my rsd spread to all of my limbs. When I told my drs about this, they said nothing. I just got blank stares. To me, that was inexcusable. Anyway, I appreciate your input too. I just have had too many bad experiences with drs and am too afraid to take the chance of spread. Thanks again though. And I hope you have a good night too.
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Old 10-07-2013, 08:10 PM #8
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I understand your point of view, but my trust in medical professionals these days is very low. (That's not to say all of them.) (I have drs and lawyers in my family so I need to make this clear so that they don't get angry with me!) The medical professionals I had said that I should try accupunture, and after having those needles put in my body, my rsd spread to all of my limbs. When I told my drs about this, they said nothing. I just got blank stares. To me, that was inexcusable. Anyway, I appreciate your input too. I just have had too many bad experiences with drs and am too afraid to take the chance of spread. Thanks again though. And I hope you have a good night too.
I totally understand about losing faith in medical professionals. I have been thru my share of complete idiot drs. When I hurt my hand in 2009, it took a year and 14 drs to get a correct diagnosis and one to finally help me...now he has turned into a jerk. But, I love my PCP. She is wonderful and caring. I get the flu shot from her or my pharmacists. My pharmacists are awesome, they totally get what is going on with me and are so in tune with my many allergies (to everything).

I find it hard to believe that acupuncture is recommended for rsd pain. Really?? When a needle can cause spread...no thank you! I have read on here where many people have benefited from acupuncture...I am not willing to try it.
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Old 10-07-2013, 08:25 PM #9
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I totally understand about losing faith in medical professionals. I have been thru my share of complete idiot drs. When I hurt my hand in 2009, it took a year and 14 drs to get a correct diagnosis and one to finally help me...now he has turned into a jerk. But, I love my PCP. She is wonderful and caring. I get the flu shot from her or my pharmacists. My pharmacists are awesome, they totally get what is going on with me and are so in tune with my many allergies (to everything).

I find it hard to believe that acupuncture is recommended for rsd pain. Really?? When a needle can cause spread...no thank you! I have read on here where many people have benefited from acupuncture...I am not willing to try it.
My pm dr recommended accupunture and so I went to one and explained my rsd to her and she said she understood what it was and it was okay to put pins in my body even my rsd arm. After four painful visits with her my rsd spread to all my limbs in a matter of 2-4 weeks. I stopped going to her and told my pm dr.
They said that she probably shouldn't have put needles in my rsd arm. I told them that I wished they told me that before I went to her and that I thought she knew what she was doing (since she told me as much). That's when I got the blank stare. I'll never do it again. I know a nurse that said she had rsd and an accupunturist helped her go into remission, but he stayed away from her rsd area. Unfortunately, he was not covered my my insurance. Anyway, I do like my pharmacist, so I'll check with him. And I do like some of my drs, just not the ones who made life changing mistakes with my health. I know people make mistakes, but I didn't get even as much as an apology or any sign of concern from them. That would have meant so much to me. It would have made me feel more like a human being and not just a statistic.
Sorry, I still have to work through these angry feelings I have towards some of my drs with the help of my psychiatrist. It's hard and I don't mean to sound so full of rage to all of you. I know you're just trying to help, and I hope you don't take what I say personally. It's not you. Thanks again for your advice again and I will check with my pharmacist. He is awesome. Hope you have a great night Nanc.
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Old 10-07-2013, 08:49 PM #10
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Default Flu Shots

being an old nutty nurse I have continued to get the yearly flu shots.... exposed to way too many sick patients to risk not getting it. Have found that if I don't protect myself with vaccinations that I WILL catch whatever is going around. It also tends to kick my **** into the gutter and takes me twice as long to recover When I lose ANY function takes months to recover even a small portion of that function. Cannot loose more or chance more flairs.
They do have the intranasal "injection" now I would do that but not recommended for people with Asthma.
Just another thing to trip along with
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