Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-12-2013, 08:47 PM #1
KWolter KWolter is offline
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Default Crps and dreadig surgery

Hello All,

I am very glad to have found this site. In December of 2012 was moving a power pallet jack at work. I tripped and hit the jack into reverse and pinned my foot between the jack and a loading dock. I suffered 17 broken bones, 5 crushed bones and did massive damage to my lisfranc joint. Foot was broke clean across into 3 pieces. my toes were displace 11 millimeters to the right of my foot. From the second the injury occurred my foot felt like it was burned to the bone. I knew right away that the pain was not from my breaks but was from something else. I just didn't know what. I had surgery last January and they screwed my foot back together. Through all my treatments I kept telling the doctors I could understand if my foot hurt but I could not understand the burning. In June I found out that my first surgery did not take and that I would need to under go another surgery. They are going to fuse my foot from the ankle forward, try to replace my cuboid bone, fix my arch and try to reset my foot into its proper position. the new surgeon in passing said I had RSD. At the time I gave it very little thought. Now I have started researching the CRPS. It was like a slap to the forehead. I now know why I have all these crazy things going on and no it is not in my head as some of my doctors suggested. I have now put together a awesome medical team and aggressively treating my CRPS. I am on Norco 7.5s (allowed 6 a day but try to keep it at 4) Fexerol 10mg 3 times a day, capsaicin cream and Clorazepate 7.5s 3 times a day. I would recommend the Clorazepate to every one I go from 4 to 6 Norcos a day down to two when they put me on the Clorazepate. Here in is where I now I ask you all for some advise. If I have my next operation now I lose the last two months for my one year mark and thus greatly reduce the chance of remission. If I wait my foot could collapse,we are not sure how long it will hold together. Ad again if I wait and do go in remission surgery could put me right back to where I am. Also most likely doing surgery will stir up my CRSP worse. I feel so stuck and do not know what route to take. My CRPS has been on the move lately also. It is now on my ankle and calf. When I was told about having it, it was only on a small portion of my foot.
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Old 10-12-2013, 10:24 PM #2
RSD ME RSD ME is offline
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Hi and I'm so sorry about your situation. I asked my drs if my surgeries were necessary. Both times they said yes, because infection could spread and could possible make rsd worse. I will probably need another surgery. I am checking with my dr in two wks to be sure, but am pretty sure if I don't do it, it could cause damage to my other organs which could also aggravate my rsd. So I will probably get it done. If I were you I would check with all your drs and make an informed decision based on what they say and what you and your family think. But that's just my opinion. The ultimate decision is obviously up to you. Take care and my thoughts and prayers are with you for a speedy recovery and hopefully remission.
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Old 10-12-2013, 10:32 PM #3
KWolter KWolter is offline
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Ty Renee I will be praying for you!!
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"Thanks for this!" says:
RSD ME (10-13-2013)
Old 10-12-2013, 10:59 PM #4
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Hi, glad you found this site, wish it wasn't necessary, but it has proven to be a lifesaver for me.
From what my pain mgt. Dr. tells me (she's in remission from CRPS). She says IF I needed surgery she would give me a nerve block proceedure both immediately before and after in attempt to prevent spread or flare up.
Did they advise you to take 500-1000 mg Vitamin C to help prevent spread?
Anyway lots of great support and advice here.
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Old 10-12-2013, 11:01 PM #5
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Thanks I will ask about the nerve block,, and yes I am on 500 c
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