Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-08-2013, 02:40 AM #11
painman2009 painman2009 is offline
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painman2009 painman2009 is offline
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I am reading a lot of responses.. and thank you all for them.. one thing I notice is depression seems common with this beats.. every one expects you to be depressed… I am not sure that Depression fits what I feel..
I know have am having a great deal of difficulty controlling and stabilizing my moods..but my moods swing..and wildly from anger, frustration, confusion, to calm, serene, accepting, .. I mean yeah from time to time . I will mourn for the loss of mobility, and constant pain.. but I rarely dwell on those feelings,,, Am I just the odd ball out on that??? and now I find myself asking ME am I in denial and Im really depressed. ???? and I usually come to the answer of no..
Idk maybe Im fooling myself.. you all see my posts.. what do you think???
… Im glad that I can post all of my oddity.. questions.. I am not always brave enough to ask my Dr about it . so I ask here first.. and you all are awesome in your responses.. I get a feel of what to expect from my dr. when I do ask..
I appreciate. and am very thankful that all of you who suffer this beast are open with me and each other .. and this forum gets to do its job through those ..ARKs….( Acts of Random Kindness) ..Thank you all.. and I will pray again that every one wakes to better days..
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Old 11-08-2013, 05:08 AM #12
Brambledog Brambledog is offline
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Brambledog Brambledog is offline
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Hi painman

I hope something from this is helpful. I'm no doc, so all I can do is speak from my own experiences. Hope I don't offend you or anyone else!

I've fought a few times against the tag of 'depression' over the last few years with this. A couple of docs have mentioned it, if (when talking about how CRPS has affected me) I've burst into tears. I feel quite angry about it tbh. I try to keep positive most of the time, keep myself busy, I found alternative work, continue to try to keep up with my kids and house and husband. Just because I have a few bad patches with this, or burst into tears in the privacy of a doctors office (where they ask you to just speak freely ) I don't think they should rush to that conclusion.

Depression is a terrible thing from what I've read and heard from an acquaintance who has it. Total darkness and hopelessness, where you can't even bear to face the day, or do much of anything. I know there are grades of it, and I would never say that people who regularly feel depressed shouldn't be treated, or that anyone being treated for it and still walking about has been misdiagnosed. BUT in my experience, both with me and a couple of friends, doctors are sometimes quick to offer meds for depression. I wonder whether it's more to do with getting you out of their office within the brief time-slot they have available... I also question how helpful it is to tag someone as 'depressed' when what they are feeling is directly because of the terrible symptoms of the disease they are suffering from. I suppose in the end the judgement about where the dividing line is between 'feeling very down' and 'being depressed' is up to your doctor.

No one can say from your posts whether you have depression. Only a professional can make that judgement. Much of what you say sounds familiar, and I have thoughts like that myself. I would guess that most of us feel the loss of our former selves with sadness and some anger at times - we wouldn't be human if we didn't. While we can 'accept' what's happened and try to move on, we can't erase the past, or not feel bad for what we've lost. Trying not to feel like that is part of the battle we all fight every day.

Some days when the pain is really bad, and I can't do much of anything, I can get pretty low and cry and mourn my old self, I can wonder what I'd be doing if this hadn't happened, and wonder why on earth it happened to me. But I'm lucky that those days are rare, so for me I think they're a natural part of dealing with this, and I believe it's healthy to let those feelings out every now and then. If I felt like that most days and struggled to function, then I'd be daft not to seek some professional help.

Take care of yourself and I hope your day goes as well as possible. Don't be afraid to talk to your doc if you really think you are depressed. It's no joke, and this condition has certainly been known to cause depression.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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