Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-14-2007, 07:34 PM #1
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Hi Mary,

I have been on gabapentin - 3600mg that was started as an inpatient in hospital. It never made that large a difference to me - but some people have great results, I struggled with the weight gain I experienced (BUT, I had gone from being a very active 16 year old hockey player and athlete to nothing at the same time)... so it could have been that. It does suck that the PM dr agrees you have RSD - but it might hopefully mean that you can get better control of your pain!!

Love

Frogga xxxxxxxxxxxx
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Old 05-14-2007, 08:30 PM #2
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Mary, when I take it(Neurotin) on a full stomache.. this seems to knock me out at night!! LOL
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Old 05-14-2007, 08:35 PM #3
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ok...i took everything at 8.00 and it is now 9.30 and I'm wide awake. Oh well, nothing is normal for me.
Frogga, I know what you mean about being active. I used to show horses in both jumping and dressage. Haven't ridden in over 3 years. at least I can still kinda take care of them. they are in my back yard..actually behind my back yard. from my door to the barn is about 20 steps. they are my reason for getting out of bed every day. Kids are married, one is at the university getting a BS in Biology, and the other is getting her masters. she is getting a MFA. Hubby can do for himself, the ones that need me are my 3 doxis, 3 cats, and 3 horses.
mary
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Old 05-14-2007, 08:54 PM #4
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Quote:
Originally Posted by lostmary View Post
ok...i took everything at 8.00 and it is now 9.30 and I'm wide awake.
Please keep in mind that these are very low doses, though!
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Old 05-14-2007, 09:26 PM #5
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Please keep in mind that these are very low doses, though!
Ya.. tell me about it!! wahhhhhhhhhhhhhhhh.. LOL.. I wanted it upped!! we shall see when I get my 3rd. and I hope final ganglion block done tomorrow(Tues) Love, Desi
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Old 05-15-2007, 07:21 AM #6
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Good Morning,
Somebody get me some really really strong coffee. could sleep a little more, but had to get up to feed my horses. I don't know how soon you can notice a difference. I'll be on the look out for anything. Mornings are always my best time, so I can't tell. It is a little hard to think for some reason...Oh well.
at least I saw the end of the bachelor last nite...lol (important things )
Mary
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