Originally Posted by RSD RENEE

Hi again Kevscar. I agree that more awareness needs to be made of this horrific disorder. I have had so many drs make my rsd worse because of lack of knowledge of it. Since November is RSD awareness month, I am passing out flyers from RSD Hope to drs offices and others that I think may be able to help find a cure for this disorder. It can't hurt and hopefully maybe if we all try to spread the word it may help increase the chances of finding a cure. Take care my friend.

Originally Posted by catra121

For me...when I first got diagnosed I was all over calling it CRPS. I thought, "This is the RIGHT name for it and that's what I am going to call it." Unfortunately...every doctor I have had calls it RSD...and I gave up calling it CRPS. I really don't care what the name is...so long as the people I am talking to understand what I am talking about.

I believe both names fail to really convey what this condition is...and honestly...what name COULD? We are all so similar and we are all so different when it comes to this condition. There isn't any name, in my opinion, that can truly capture what we are going through, dealing with, etc...nothing that can do justice to a description of WHAT this condition is.

Even Kev's FIIKS...while accurately describing how well understood the condition is...doesn't touch on how truly complicated and awful this condition is.

Regardless of the name...I think it's much more important that more doctor's are educated about it...scratch that...that ALL doctor's become more educated about it so they can diagnose and treat the condition early enough to possibly do some good for their patients.

I personally think all the focus on the name detracts from the very important issues that need to be dealt with regarding the treatment of this condition.