Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-30-2013, 10:59 AM #1
Kevscar
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If you can get him to come to you so he's sees how it affects all the family it might shock him into action, especially if you make it clear that it could happen to him, his family or his friends from something as simple as a twisted ankle or a sprained wrist. After seeing us at home was when Iain really started to work on this.
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Old 10-30-2013, 09:08 PM #2
painman2009 painman2009 is offline
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Quote:
Originally Posted by Kevscar View Post
If you can get him to come to you so he's sees how it affects all the family it might shock him into action, especially if you make it clear that it could happen to him, his family or his friends from something as simple as a twisted ankle or a sprained wrist. After seeing us at home was when Iain really started to work on this.
So many stories that have turned from bad to worse makes it hard to stay positive, but it is important that we do the best we can to stay positive. I cant stand stupid, single minded and self rightouse people, so lev. dont give up its time to shove it in their face, print all the documentation you can, pull up RSD/CRPS info from around the world, copy some of our stories their is too much evidence that this is progressive and permanent , and from the best hospitals/ clinics and Drs in the world. so much literature to support your fight and so little to back theirs, the stories of the lives and families torn to shreds because of this beast. Let the truth do the work for you and if they are so blind to see it find a group of local sufferers that are willing to speak on your behalf, its just the way this circle goes, we usually have a fellow sufferers back. and if it helps you . think of the people that might follow you in this struggle, and how you might ease this down the line,(its how i get to my dr,s appointments and how I face the IME's (insurance medical exams) I hope you dont give up. I will send you what ever positive enrgy I can muster and pray that tomorrow finds you easier than today.
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Old 10-30-2013, 09:59 PM #3
RSD ME RSD ME is offline
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I hope you can convince them to give you your pension early since there is no cure for rsd. It can sometimes go into remission, but my pm dr said that usually after two years of having it, there is not much that can be done except to keep the pain under control. I wish you lots of luck with your appeal and my thoughts are with you for winning your appeal. Take care.
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Old 10-31-2013, 12:38 AM #4
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I fought this far on my own, no legal help at all, as far as I know the only step left would be the European Court of Hman Rights, I have no idea how to sta\art that and I certainly couldn't travel that far.
It;s all on getting other sufferers to contact their MP's and put pressure on the governemnt now
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