Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-28-2013, 10:03 PM #1
Kevscar
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Default It's not permanent

Well not according to a UK High Court Judge anyway so they don't have to give me early release of my police Pension.
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AZ-Di (10-29-2013)
Old 10-29-2013, 12:54 AM #2
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So, they know better than Doctors? I got a similar denial about my disability here in the U.S. This disease does not heal itself. There are miraculous stories of "remission" mostly in younger people, but there is no cure.
My employer keeps wanting a timeline, but there just isn't one. My P.M. has even put that there is NO prognosis.
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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Old 10-29-2013, 04:20 AM #3
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Good grief Kev

There are plenty of research papers where they state that there is no known cure for the condition, and that it comes down to pain management for patients whose symptoms spread and/or continue after the first year. (I'm sure you know that and that you put it in your evidence). How on earth can they have decided it is not permanent?

I suppose the problem, as always, comes in the wording....I suspect that often it is stated as 'at present, there is no known cure, and the condition may become permanent for some patients' or similar. 'It is not always permanent' is carte blanche for a court to decide it is 'never permanent'. Grr.

This stuff drives me mad. How dare they?! It's just about being mean and not wanting to pay out, and the job of their lawyers is simply to admit nothing that might cost them money, and to find any tiny shred of an idea that might rubbish what the claimant is saying, and then blow that up into a huge deal. Utter utter utter ********.

Keep fighting Kev.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

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Old 10-29-2013, 04:56 AM #4
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Some pratt named Phillip Stellar. who is treating a grand total of 5 sufferers said I had,nt tried gabapentin amitrip something or other. Even though I have an advanced decision forbidding any emergency treatment even in life threatening situations becuase I have been badly hurt or made worse in 4 hospital including by 2 specialists is not reasonable grounds for refusing these despite explaining that they do not work on all sufferers, are only temporary and do not prevent spread, wounds that will not heal and most of our symptoms.
So this cannot be considered permanent
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Old 10-29-2013, 06:02 AM #5
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Sounds like you have grounds for an appeal then Kevin. If you possibly can, you should pursue this, sounds like its too important to you to let that kind of b***crap be laid down as a judgement, especially as it can (and will) be used against other sufferers in the future. You have every right to appeal, and if that fails then you can take it to the European Court of Human Rights.

I mean, FFS, if a policeman can't get some form of justice through the courts with this kind of thing, then what chance has anyone else got? You need your pension now for darn good reasons, and it's pure pettiness that they are refusing. They have no good grounds and they know it.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 10-29-2013, 08:44 AM #6
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Hi Kevscar,

I wonder if perhaps you have seen a pain psychologist? Reason I ask is since you aren't comfortable with other recommended treatment methods, perhaps maybe treating with a pain psychologist instead might suffice the officials? I think it is fair to say that we can all use someone to talk with regarding our struggles, pain etc., in hopes of finding better ways to cope. I also wonder if you are on any medications to help with depression/anxiety etc., that could help you? It is understanding to have concern over treatments after being hurt but, I wonder if there isn't something that can help you even if just a little.. by your posts it does appear that you are really down and that is very sad, not that it isn't justified by any means but sad none the less.

I truly hope you have an opportunity for an appeal on this decision. If not, how long until you would naturally receive your pension? Are you on disability of any other type in the interim?

Tessa
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