Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 08-18-2013, 08:25 AM #1
katiek katiek is offline
Junior Member
 
Join Date: Nov 2012
Posts: 40
10 yr Member
katiek katiek is offline
Junior Member
 
Join Date: Nov 2012
Posts: 40
10 yr Member
Default Problem with my psycologist

Hi, I was hoping someone maybe able to give me some advice. I was recently referred to a psyc for help with anxiety, depression and cognitive behaviour therapy. I have only had one appointment with him but I really don't want to go back to see him. I told him about my crps and how I have a low tolerance to medication and haven't found one that works. He said that as I have anxiety I proberly look for side effects. I informed him that in the past I have developed blisters in my mouth form endep and I was once given guinethadine which caused a anaphylactic shock, I had to carry a epipen with me for a few years. He still felt that my reactions were down to the fact I believed it would happen. I also discussed my insomnia which he informed was learnt behaviour. I sleep very well when the pain is mild and can't sleep when the pain is bad. Again I informed him of this it seemed to have fallen on deaf ears. He spent most of the time telling me about crps, most of his information was wrong on several times I corrected him which he didn't take to kindly too, I feel really uncomfortable about seeing him again. I wondered if anyone else has had problems like this and if anyone lives in perth Australia could they maybe recommended someone. Thanks
katiek is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (11-01-2013)
Old 08-18-2013, 08:30 AM #2
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

I don't have any recommendations on who you should see...but you need to not go back to this guy. If you don't click...he can't help you. If you don't trust him (and I don't think you should based on what you posted)...he can't help you. If he can't help you...then you shouldn't go back.

This goes for any doctor you see. Some doctors work out great for some patients and not for others. There is a chemistry there that is important and every patient has different needs both physically and emotionally that have to be met for a doctor to successfully treat them.

Take care.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (11-01-2013), ginnie (11-01-2013), Hopeless (08-18-2013)
Old 08-18-2013, 08:45 AM #3
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

What a complete jerk this guy is makes me so mad for you katiek - like you need some idiot with no idea patronising you and doing the 'it's all in your head' routine.....grrrr.......

I've seen several docs who claimed to know about CRPS but clearly didn't know it very well when it came right down to it. The problem is that it is a rare condition and few docs have the time we all do to really research it and learn about treatments etc. it's frustrating and scary though, you start to wonder who you can trust to treat you.

If you know he was wrong about you on so many levels, then ignore everything he said and find another psych who can help you deal with living with this, and not make you feel worse.

Good luck

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (11-01-2013), ginnie (11-01-2013)
Old 08-19-2013, 02:50 AM #4
Kevscar
Guest
 
Posts: n/a
Kevscar
Guest
 
Posts: n/a
Default

I had the head phsychatrist tell me the spread happened because I knew it could, told her I knew I could win the lottery so why hadn't I. Never saw her agian
  Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (11-04-2013)
Old 08-19-2013, 03:25 AM #5
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Quote:
Originally Posted by Kevscar View Post
I had the head phsychatrist tell me the spread happened because I knew it could, told her I knew I could win the lottery so why hadn't I. Never saw her agian
Classic.....such stoooopid dumb doctors are the worst!

Why do they always have to turn it around and put it on US as the sufferers? Bit twisted and mean, at the very least. I had my first pain doc tell me that it was 'up to me' and 'I could beat this if I wanted to' - so of course when it carried on getting worse and spreading I felt it was my fault for not trying hard enough I know a lot more now, and have a good pain doc who rolled her eyes when I told her, but those few words (repeated several times in my few consults with the woman) caused me a lot of distress. These type of docs are why we as the patient need to do the reading and learn as much about our condition as we can.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
Old 08-19-2013, 10:41 PM #6
katiek katiek is offline
Junior Member
 
Join Date: Nov 2012
Posts: 40
10 yr Member
katiek katiek is offline
Junior Member
 
Join Date: Nov 2012
Posts: 40
10 yr Member
Default

Thanks for the replies. I spoke with my OT who said not go back to him. She is going to try and refeer me to the psyc at the hospital who understands that it isnt in my head. I was really fustrated after seeing the guy it just reminded me of all the times i had seen drs that rolled their eyes and didnt beleive me. I feel alot better knowing i wont se him again
katiek is offline   Reply With QuoteReply With Quote
Old 11-01-2013, 06:35 AM #7
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

Quote:
Originally Posted by Kevscar View Post
I had the head phsychatrist tell me the spread happened because I knew it could, told her I knew I could win the lottery so why hadn't I. Never saw her agian


bwahahahahaha !
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
finz is offline   Reply With QuoteReply With Quote
Old 11-01-2013, 06:21 PM #8
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Kevscar

Shall we all Hit the lottery? Great post, made me smile. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Old 11-04-2013, 09:05 AM #9
katiek katiek is offline
Junior Member
 
Join Date: Nov 2012
Posts: 40
10 yr Member
katiek katiek is offline
Junior Member
 
Join Date: Nov 2012
Posts: 40
10 yr Member
Default

I have an appointment with my new psych on Wednesday, so will report back. It is so frustrating at the moment dealing with the physical aspect is one thing, then the mental issues rear their head. My anxiety has been quite bad recently. I am currently on income protection and the company placed me under surveillance, this has caused major issues, whenever I leave the house I think I am being followed. Not a great feeling. I am hoping that the psyc might be able to help me out with this. Also I was wondering if anyone else has developed compulsions. I find myself doing things such as checking I locked the car or house 5 times. I do other strange things too, my husband said maybe it is because I am sort of in control of those things where as I have no control over my body at the moment. Has anyone experienced this
katiek is offline   Reply With QuoteReply With Quote
Old 11-01-2013, 09:54 AM #10
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Katiek

People do not experience anaphylactic shock, or things like angio edema, just because they think it. This is a very serious thing that happens that can threaten a life. Go to another doctor that takes what you say seriously. These are NOT mental issues, but an alergic reaction. I too carry an Epi pen. You have to find a doctor that doesn't talk "down" to you. You deserve to be taken seriously. Docs like that make the situation worse. Hope you can find someone new to help you. We are here too at NT to listen anytime. Ginnie
ginnie is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Does Anyone Else Have This Problem? MiaVita2012 Traumatic Brain Injury and Post Concussion Syndrome 7 04-12-2013 11:07 AM
Big Problem Cblue Bipolar Disorder 49 11-07-2011 01:22 AM
Not a "power pin" problem, but a power adapter problem. sjp_fanatic Computers and Technology 6 05-08-2007 08:14 PM


All times are GMT -5. The time now is 05:51 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.