Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-01-2013, 08:52 PM #1
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Default Pain is worse at night

I seem to have more pain at night like right now. I was wondering if anyone else had this happen to them too and what you do to try to ease it. I can't take anymore meds than I already take and can't take the pain either. It seems to be getting worse. Now my feet are starting to swell more and burn. That concerns me because my rsd started in my right wrist and hand. Any suggestions would be greatly appreciated.
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Old 11-01-2013, 09:00 PM #2
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Frown Pain pain everywhere

My thoughts are that at night I am no longer distracting myself with the tasks of the day. I also think that at night I am alone and do not need to wear my "happy, life is great" mask. As many here have noticed weather changes can have a HUGE effect in our pain status.
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Old 11-01-2013, 09:02 PM #3
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Thanks Pooh. I'm not as active at night and it is colder at night too. I never thought of that. Thanks again for caring. I hope you have a good night. From your friend, RSD RENEE.
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Old 11-02-2013, 12:40 AM #4
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Hi Renee,

I am sorry about your night pain, I wish I could be of more help but honestly this is something I think many of us deal with. The only thing that helps me is my evening hot tub or epsom salt soaks which helps me relax. A nice glass of vino also helps if you are not against this indulgence.

It is a hallmark sign of peripheral nerve issues to have more intense pain at night and even the disruption of sleep. From what I have been able to understand by my medical professional team is that as the peripheral nerves are stimulated through the central nervous system as the day wears on pain increases. When we are sleeping or resting out sensory system has a chance to take a break (to a certain degree) but after we start moving about and add light, sound and movement we have less ability to keep pain at bay since more senses are now on alert. This is the point of desensitization.. whether that be by touch or environment both of which increase pain.

Because of this, I try to get most of my daily goals done in the first 4 hours when pain is at its minimum.
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Old 11-02-2013, 01:52 AM #5
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Nights are the worst! Lack of sleep also makes things worse. Im with Pooh, everyone is a sleep, so the distraction is missing. Really does cause the brain to start thinking and focusing on the pain.

Thats when internet games come in handy
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Old 11-02-2013, 08:42 AM #6
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Try a heating blanket? Or a heated mattress cover? I've done it, it works great
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