My rsd hand and wrist get ice cold and stiff when I try to type with it too much. It also gets a tingly burning sensation. Does anyone else have this problem? I'm just wondering why this is happening. It's so weird. I have feet that burn and a hand that is freezing. I just don't get it. Thanks again for any input on this.

Posture, arthritis, cervical spine issues, TOS, Reynauds, diabetes and other things can cause this to happen along with CRPS/RSD.

Try sitting up straight concentrate on your breathing and gently roll your shoulders by making circles with them, then follow that with a few shoulder shrugs (holding it in the shrug for a second or two) and then relaxing. This usually helps with cervical tension and helps blood circulate.

Check also that your keyboard, mouse, chair and monitor are at proper ergonomic height as this can play havoc on already weakened muscles and blood flow.

Tingly/numbness that is positional rather than constant makes me wonder if you do not have something going on in your spine? This can easily be overlooked by medical professionals especially after being diagnosed with RSD.

Sometimes when I wake up in the morning I can't feel my hands for a few minutes. they are completely numb. Then the feeling comes back and I get pins and needles. Thanks for your advice. I'll check with dr. My husband is diabetic and I had him check my blood sugar with my finger on my good hand and it was normal. I wanted it checked because my wounds don't heal quickly if at all. I'll have to see what the drs think about my spine. I've had scoliosis since I was a teenager. Thanks again.

That is a very common symptom and not necessarily should alarm you.. I would try not to stress over it and maybe shift your sleeping to your back with a neck roll type pillow under your neck to see if that is the problem.

For your soars - have you ever tried doing a detox cleanse? This can be very beneficial for some people and it might just give your body the boost it needs to heal. Unfortunately if you aren't doing enough to circulate blood flow through your body by movement or massage this could very well be why you aren't healing normally. Can you use a stationary bike like a recumbent?

Renee, do you know if you have "cold" RSD/CRPS? I do, which means I don't swell much. Instead I get VERY cold limbs. It's all part of the RSD gig I'm afraid.

I've never heard of that but I've had coldness in my rsd hand since I got rsd, and when i have pain in other parts of my body they cold too. My skin feels cold and my bones do too sometimes. I get coldness on my stomach where I had my surgeries and on my right hip where I have osteopenia. It is followed by pain but not alot of swelling. I do get some swelling in my hands but not like when I first got rsd. My feet even get really cold and tingly like pins and needles sometimes. And then sometimes my feet get hot an burn like last night. sometimes my hands get all sweaty usually first thing in the morning but that doesn't happen alot. Anyway thanks for telling me about cold rsd. I think maybe that may be exactly what I have.

do you have CRPS I or II?

I have the one without nerve damage. I think that's CRPS I.

Coldness was one of my very first symptoms (other than the pain) that I got. My leg would get ICE cold from my knee down (RSD in my ankle). So cold to the point where I would walk on tile and the tile would feel cold to my good foot and HOT to my RSD one. It was also one of the key symptoms that tipped off the doctor who diagnosed me that it was RSD.

Now (my RSD has spread to my entire upper body since then) I still get the coldness...but not as often. It typically only comes with bad flares...which can be caused if I am using my RSD areas too much or they can come out of no where.

As always...you should definitely discuss this with your doctor to make sure there is nothing else causing the issue. You wouldn't want a circulation problem to go undiagnosed just because RSD COULD be the cause.

This is great advice!