So I have not been feeling well and decide to go grab some hot egg drop soup for lunch at a joint called paradise café. I begin to eat this and my tongue forgets what it is suppose to do in that whole swallowing action we do when we eat. It's a CRPS issue I've had for a while now and strikes whenever it wants to but almost always this is a problem when the repetitive action of swallow, swallow, pause is involved. I had actually forgot about this when I went for soup. I was looking for comfort food being sick and all.

Anyway, so I start to eat and start to choke. I mean REALLY CHOKE! With all the phlegm I have going on this only made what is always kind of frightening experience, a crazy scary experience! Sheesh! I am by myself and think well hell, I'm going to die in paradise.. lol. Now my head wont quit pounding... ug / ouch! It's nap time now for sure.

I'm sorry you had such a bad experience eating. Sometimes when I eat the food seems to gets stuck in my throat and won't move for a about a minute. It's gross but I usually have to get it back up and then spit it out. Usually acid accompanies it. I don't know why this happens but it sucks. I'm going to ask my endo dr about it when I see her next week. It doesn't happen too often thank goodness. I never had the tongue problem you have though, but it sounds awful. I hope it doesn't happen anymore to you and that you feel better soon.

hey guys.. this happens to me ..A lot! when I spoke with My PM dr he said it is most likely due to the medications we take. first our body responds slower than a normal body (meds) and also the medication dries us out making it more difficult to swallow ..the enzymes that make up saliva also act as a lubricant.. knowing doesn't make it suck less

lol ... so true!

Sorry it’s such an explicate docu of my day today.

So there was no nap today (damn it). I worked this morning , went to lunch, made my post here, laid down and I start having big time pain in what feels like my gallbladder (right side by my lower rib cage). Also having intermittent pain on the opposite (left side) too. My upper back muscles (not my spine), chicken wings area, screaming with pain. I felt nauseous, I have had HORRIBLE heartburn, digestive issues, and everything in me was saying your gallbladder is in trouble. Trying to find something to eat that doesn’t kill me with indigestion afterwards is a chore. This was another reason I was trying to seek out something I thought might be easy on me. Soup that was basically clear, and well that didn’t work out, so I ended up with chicken and veggies (Moo Goo). Apparently it was all for not. I ended up in the ER tonight. What a fiasco that was. I just love the hospital.

I felt so bad because I waited for my husband to get home to take me right after he walks in the door from work (new job started in Oct). He’s sick as a dog (several of us in the house have this virus) and I have to make him drive me across town and sit in the ER with me. His head is about to explode from sinus pain, he’s brought his laptop to try and finish his homework (he’s in college), as his term papers are coming due, and did I mention just a few weeks ago we got news that his father has terminal lung cancer that has metastases in his bones, brain, spine… everywhere. They have given him six months. He lives in San Francisco. So while we are in our five hour wait and see pattern with me, he gives me an update on what’s going on with his Dad. I feel like such a pain in his you know what. This man must truly love me, and because I love him, I feel like such an extra burden!! It’s ALWAYS something going on with me!!


The ER.. The short version of this visit: They do an EKG to make sure I’m not having a heart attack (omg) and thank goodness that was ok. They do a sonogram and gallbladder looks fine (in the moment I’m finding this VERY hard to believe). They have me swallow a lidocaine / Maalox cocktail. I did tell them I nearly choked to death earlier in the day. At this point I am scared that I will have a repeat episode, but I do it anyway. OMG!!! That was horrible in every way! They gave me some meds for pain, and IV Zofran and some sort if IV antacid.

The bottom line: The diagnoses is GERD. What? What’s that? Doc tells me; gastroeesophageal reflux disease (perfect, another disease), and PUD Peptic ulcer disease (oh great, one more). Says it’s probably also Gastro paresis. Awesome. I think I’ve heard about the connection with that and CRPS. He looks at me like he has no idea to confirm a connection, so we glaze over that.

So not only do I have spasms in my bladder, I have to assume that the CRPS is the culprit here too as the doc is explaining the nerves involved in all this. <sigh>

They loaded me up with Rx and now I will be looking for a GI doc I guess. ER Doc says, yes, you need to see one. This is turning into a full time job just chasing doctors. I can’t even get what is supposed to be my other full time job put to bed so I can focus on all this. I’ve been lucky to get 3, 4 or MAYBE 5 hours in at work and then I’m done. I have to lay down for the balance of the day.

I feel so overwhelmed with all this. My disease(s) are wearing me out, literally. And I fear everyone else too! Damn it’s depressing.

Oh Vrae honey, I'm so sorry you're dealing with yet more and more... At least they didn't say there wasn't anything wrong (which we all know they can do even in the most extreme circumstances) and you know what's been causing those awful problems. Hopefully they can treat them now and you will start to feel a bit better.

Of course it sucks. You completely don't deserve this crap, and I wish I could wave a magic wand for every one of us and just take it all away. But we can't, and you have to take some deep breaths and gradually come to terms with it and find some balance again.

You'll be ok girl. You're brave and positive and you can get through this. I admire so much the way you tackle everything that tries to stop you living your life the way you want. You'll get there.

As Joe Black said, 'you're one of my favourites'

Bram.

bwahahahaha !

At least you still have your (warped, but AWESOME !) sense of humor !

Seriously, that's scary, hon. In the future, No soup for you!

I agree finz Vrae, listen to finz lol!

Bram

You all are so wonderful! You make me laugh, give me good advice and things to ponder. Thank you for that!

I over did it on knocking things of the household chore list. So far, two days in bed recovering. Looking at my work feeling like I actually accomplished something ... priceless!

LOL! That's a good one

I love Paradise Cafe, but it got me too once! I was experimenting with taking some herbal drug and I sat there and got hotter and hotter, and sipped ice water, then stuck my hand in the ice water glass, then took an ice cube and rubbed it on my head, then finally decided to try to get home and collapsed outside of the door. They called the paramedics and I had to go to the emergency room. But I still love to go there - great place!