Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-11-2013, 11:25 AM #11
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Kevscar, I love your quote "I used to be indecisive, but now I'm not so sure." That is so me!
I hope you're doing okay today too. Thanks again for the link above. It was very good. Take care. From your friend, Renee.
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Old 11-12-2013, 02:02 AM #12
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Renee, sorry to be late to the post, glad you're through the worst of the flare. I know how it is to not think rationally or remember coping stategies when that catches you off guard. But when does it give us warning huh?
Your Aunt sounds like she has a heart of gold for you! Give her Love!
I do hear you on those guilt feelings! I wish I had advice on that but I just don't, I just share them.
Honey, like Tessa. I've tried the "Audible" self help meditation listening books and they do help me some what. I listen to them when trying to relax and sleep and change my frame of mind. It's a little bit of a personal preference but I can tell you which ones I like if you want.
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Old 11-12-2013, 01:08 PM #13
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Thanks AZ-Di, I appreciate you kind words and would love to to know which self help books help you out. Thanks for your caring words for my Great Aunt too. She is very special to me and I hope she will be okay. I hope you're having a better day too. Take care my friend.
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Old 11-12-2013, 05:15 PM #14
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Quote:
Originally Posted by RSD RENEE View Post
I'm starting to get a bad rsd flare. I feel like my whole body is burning and hurting and I'm not due for my pain meds again for another two hours. Any words of encouragment to help get me through the next two hours would be greatly appreciated. I'm starting to have another meltdown because of this. Thanks.
Sorry your in so much pain I feel for you my fellow crps friend
I hope your pain deceases soon Mike NZ
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Old 11-12-2013, 05:35 PM #15
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Mike, You are so sweet! Thank you for your kind words. I'm so glad you joined this forum. I hope you are doing okay and have a good night. Take care my friend and thanks again for caring.
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Old 11-12-2013, 08:13 PM #16
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Old 11-12-2013, 09:51 PM #17
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Quote:
Originally Posted by RSD RENEE View Post
Thanks Tessa. You always have the right words to cheer me up. I've just been extra cranky because of my menopause and financial stress on top of my rsd pain. Now my Great Aunt is really sick (she's my son's Godmother) and we're very close. The nursing home said we can't see her until maybe tomorrow. I have a bad stomach again and feel like I'm going to throw up. And then there's the mountain of medical bills and other bills we can't pay and my son's college tuition and his rent due soon. OMG. I just want to run and hide. I'm so overwhelmed and feel so alone sometimes. I have a supportive and loving family, but sometimes we have our stressful moments like right now, and I just want to crawl under the blankets and hide. And the timing couldn't be worse because I feel like crap. I take percs 3-4x a day and have since I broke my wrist 2 1/2 years ago. Percs along with the Neurontin from my pm dr help me deal with the intense pain I feel most of the time. I don't want to take anymore because my stomach and haven't really except when I had my two surgeries and failed root canal last year. My stomach can't handle more than 3-4 times a day usually for a long period of time. But I can't seem to handle the rsd pain if I try to take less than at least 3-4x daily along with 1800 to 1900mg of Nuerontin. My pm dr said it was a low enough amount that it shouldn't hurt me. As for current strategies, I want to get an emergency rsd flare box like Bram said she had a while back. I really need to do that soon. Right now I usually take an extra perc (I try to take just three a day, but when pains really bad I take a fourth). Today is one of those days. Then I put soft pajamas on and go to bed and lie there with my heating pad on my stomach and sore areas. I also make a cup of tea, sleepytime or lipton with honey, and grab a chocolate bar and turn on a comedy on tv until the pain subsides. It usually takes about an hour for my bad flare pain to subside. I also talk to all of you for support. You guys help me so much and I can't thank you enough. I can take my meds in 45 more minutes and then I'm going to lie down again with more tea. I feel a little better now. The flare is passing. It took a good hour and a half, but I made it through thanks to you and all of your support. Thank you for reminding me again that I have made it through this before. I have to write that down. When I'm in alot of pain, I forget everything that helps me be more positive. Thanks again for all of your help and for always being there. You're a good friend. You are all good friends. I"ll talk to my pm about maybe trying other meds, but the percs and nuerontin really help most of the time. I'll see though what he says. Thanks again Tessa for listiening to me vent. I hope you are doing okay and have a good night. Take care my friend. Sorry for the typos, my hands are still hurtng and fingers don't want move to well. Thaks again. From your friend, Renee.
Things will work out.Remember to ask God to point you in the right direction.I was really lost.Everyone dear to had past,I was left with great dept.At the time boyfriend said to me..One bill at a time.One day at a time.Ask God to guide you.I did,now bills are paid,and I married the man of my life.During that I had sent the hospital $100.00 and told them I will do my best.I prayed about it.My prayers were answered.The nice lady sent me a form to fill out,due to the passing of my mom,I sent the form in,next I was told paid in full.AMEN...GOD PLEASE TOUCH OUR DEAR FRIENDS AND NEW FRIENDS.
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Old 11-13-2013, 11:25 PM #18
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I'm so sorry for all you are dealing with...I can't imagine how anyone would cope with the horrible pain AND menopause (that alone is tough...although at least that only last a couple years). It's incomprehensible to me that the medical society can't find a cure for CRPS...if they can create stem cells to repair damaged tissue in a heart why can't they do the same for damaged nerves? I keep praying that will happen soon....please feel better soon!
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