Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-10-2013, 02:07 PM #1
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Help Opiates and Massive Headaches

Over did it on house chores and finally broke down and took three doses of opiates to get the pain under control again. My body is feeling better, but oh wow the headache that accompanies that damn drug! I can't figure out which is worse, the full body pain or the friggin MASSIVE headache that comes when I take opiates. It is one reason I RARELY take them.

Does anyone else have this issue? Have you found anything to counteract this problem?
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,

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Old 11-10-2013, 02:35 PM #2
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Hi Vrae! Boy is it easy to overdo it!! I took a couple doses of demerol yesterday and woke up with a pounding headache this morning. I had to take a fiorinal to get rid of the headache. It happens every time I take the demerol more than once in a day. A lot of the pain meds give me migraines after one dose.

Hope your head is feeling better!
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Old 11-10-2013, 02:53 PM #3
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Hi Vrae! Boy is it easy to overdo it!!
I just reread this and I think, maybe she meant over doing it with chores, or anything like that. Yes, indeed, that is easy.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,

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Old 11-10-2013, 05:47 PM #4
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I get headaches sometimes after taking percocet. Not always though. I've been taking 3-4 a day since I broke my wrist. That along with the neurontin helps the rsd pain to subside. I think the pain is worse than the headache, though I don't like the headache. I take advil too and that sometimes helps the headache. Sometimes I just have to ride it out. I'm going to check with my dr about other meds that may help that don't cause headaches. I'm curious to know how many of you are precribed drugs like percocets on a monthly basis along with nuerontin. I wonder if there is something less addictive that can be just as effective with dealing with the rsd pain. I hope you feel better soon Vrae. Take care my dear. From your rsd friend Renee.
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Old 11-10-2013, 06:36 PM #5
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Originally Posted by RSD RENEE View Post
I get headaches sometimes after taking percocet. Not always though.
Sheesh, I get a headache every single time, and often they are horrific! Ironic because as I researched this I find that often people take opiates for headaches. The pain I experience with RSD/CRPS is out of this world sometimes, and I play games with myself as to when I will say Uncle and take the painkillers. I have waited too long before taking them and the pain has gotten ahead of me and I wind up in the ER to get it under control.

I don't get a monthly round of opiates. I have them for breakthrough pain. I don't take them daily, but my fear is that some day I will need them daily, and what in the world am I going to do about the headaches? I'm going to ask my doc about this as well as the drug Nanc suggested.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 11-10-2013, 06:46 PM #6
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Thanks Vrae. Maybe I don't get headaches all the time because I take advil 3x daily. But then that affects my stomach. So I try to stop taking the advil for a while and then my headaches start again. It's a vicious cycle. I am going to see my pm dr next week for my monthly med check and see about other less addictive drugs to take for my pain if there are any. My rsd pain is really bad without my pain meds and also relentess. I wouldn't be able to get out of bed and function the little bit that I do without them. Thanks again for you info. I hope you feel better soon. From Renee.
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Old 11-11-2013, 02:52 AM #7
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Quote:
Originally Posted by Vrae View Post
Over did it on house chores and finally broke down and took three doses of opiates to get the pain under control again. My body is feeling better, but oh wow the headache that accompanies that damn drug! I can't figure out which is worse, the full body pain or the friggin MASSIVE headache that comes when I take opiates. It is one reason I RARELY take them.

Does anyone else have this issue? Have you found anything to counteract this problem?
Yes i too get major headaches from opiates but since i stopped taking them my
pain is less and no headaches. I found that the opiates increased my pain when they start to ware off so what you do is take another then another and its just a vicious cycle. Hi i am Mike i have crps of my entire right side started from RSI milking cows have had for seven years now i am from New Zealand i am 36 divorced not long after i got crps just looking for others who understand what i am going through. Hope what i said helped in some way
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Old 11-11-2013, 08:17 AM #8
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Originally Posted by freebird36 View Post
Yes i too get major headaches from opiates but since i stopped taking them my
pain is less and no headaches. I found that the opiates increased my pain when they start to ware off so what you do is take another then another and its just a vicious cycle. Hi i am Mike i have crps of my entire right side started from RSI milking cows have had for seven years now i am from New Zealand i am 36 divorced not long after i got crps just looking for others who understand what i am going through. Hope what i said helped in some way
Hello Mike - Welcome to the group and thanks for sharing!
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Old 11-11-2013, 10:01 AM #9
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Originally Posted by freebird36 View Post
Yes i too get major headaches from opiates but since i stopped taking them my
pain is less and no headaches. I found that the opiates increased my pain when they start to ware off so what you do is take another then another and its just a vicious cycle. Hi i am Mike i have crps of my entire right side started from RSI milking cows have had for seven years now i am from New Zealand i am 36 divorced not long after i got crps just looking for others who understand what i am going through. Hope what i said helped in some way
Hi Mike from New Zealand! Thanks for the response and welcome to the group! So sorry to hear that you too have this damn monster. You've found a good spot in this group as we really do understand what you're going through and the support is amazing.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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