Has anyone ever gone into remission from their rsd. And if so how did you get it to do that and how long did it last. Thanks again.

Hi Renee! I was first diagnosed with RSD in the right side of my face. I was treated very aggressively with meds and stellate ganglion blocks. I was in remission for many years, maybe 13. I had flares during that time, but they were minor and I could control them with meds.

I came completely out of remission in 2005 and it has been pretty much hell ever since as I have it all over now

Do you know what caused you to come out of remission. I'm sorry that happened. My pm dr said he knew someone who went into remission from rsd in one hand and that a few year later they got an infection in the other hand and the rsd came back.

I have no idea what brought me out of remission, but I remember it was in November that year and the ice cold wind hurt my face like crazy. A dr at the time told me I had trigeminal neuralgia too.

I'm sorry to hear about that. I've never gone into remission. I keep hoping someday I will but no luck so far. You'll be in my thoughts when you have your procedure done. I hope it helps you to feel better.

Thanks Renee, I appreciate your good thoughts!

I forget...how long have you had RSD?

Two and a half long years. It just started to spread about six months ago to all my limbs and stomach. As you know, it has not been a fun journey.

Definitely not a fun journey.

I think the only reason I ever went into remission was because I was treated very early and aggressively....meaning SGB's once or twice a week for a while. Those, with the meds, helped me greatly.

Hey Nanc (and Renee lol)

Nanc, so sorry you are having such a rough time now. Must be doubly awful after having 13 years of feeling much better. I'll hope that your symptoms settle again and maybe you can get out from under this bad time

I'm a bit confused about what remission really is. Last year I was much worse than I am now, but I defnitely wouldn't consider it to be in remission now, as I have pain, burning, cold, swelling etc daily still. I think it's more the positive effects of exercise and pain management that have got me here.

Nanc, when you were in remission, you said you still had the odd flare - did you feel pretty much 'normal' the rest of the time? How bad were the flares and how frequent? Hope you don't mind me grilling you!

Take care of yourselves girls, I send you each a gentle iHug across the miles, and hope you have a better day x

Bram

I've had this for 10 yrs this month. The first 8 yrs just in left knee and would flare at least once a week. 2 yrs ago it started hurting more and even though I mostly went into remission during my first pregnancy I am no where near going into remission during this one. It has spread from just my left knee to now being mid thigh down to toes, and right knee. It sucks, and I WILL NOT take the meds for fear they will hurt my baby. I would rather suffer than hurt him. I also wasnt treated for rsd for 9 yrs. I was on treatment before I got pregnant again, and I will start treatment after he is born.