Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-12-2013, 09:09 PM #1
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Hello moose. I'm practically a neighbor - I live in just outside Albany.
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moosey2me (11-13-2013)
Old 11-12-2013, 09:55 PM #2
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That's good to hear.Its a tough but we must keep fighting.How long have you had RSD?And where?
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Old 11-13-2013, 07:50 PM #3
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Originally Posted by moosey2me View Post
That's good to hear.Its a tough but we must keep fighting.How long have you had RSD?And where?
I have it in my left foot, for a little less than 2 years, but was only diagnosed in feb of this year. I have it relatively mild, because my pain is not severe and I don't have a lot of sensitivity on my skin -just a little like a sunburn. I have swelling, coldness, and pain when I walk or stand. I think that it is why it was not diagnosed early because my pain is not severe. Also i didnt have any injury. The doctor thinks maybe I had a tarsel tunnel entrapment but if i did it is gone. or else I am just prone to crps.

I had some lumbar sympathetic blocks, which helped some. Now I take gabapentin and voltairan. My pain is about 50% better than before. I try to stay positive - I am lucky because I can still drive and work and such. I am lucky to have a desk job, so I don't have to stand a lot. And I am lucky that it hasn't gotten worse and it hasn't spread.
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Old 11-13-2013, 08:08 PM #4
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Every day is new.i am greatful I still work ,drive and walk when able.when I go shopping I have to use a wheelchair.I hate it...But I have to.I get in,might not get out.I sure hope they find a cure for all of us.I will pray for you.I hope you enjoy this site as much as I ..Please keep us posted how you are.
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Old 11-13-2013, 08:16 PM #5
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One more thing ..you better read what others have said about injections..It is a tough choice.Thinking it might work.I had 3.nothing worked,,PT chiropractor,and acqu...after each time is was in bed for atleast 3 days..Have you tried a heating pad?NO ICE EVER...YOU can cause more damage..Good luck
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