Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-16-2013, 09:10 PM #1
freebird36 freebird36 is offline
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Mad Hi

My pain is through the roof today and i have tried everything possible
I went to see my PM and was told there is nothing more we can do because
i have tried every drug there is when minimal help from them

Now your cure sounds great but how long have you had crps for
because i thought i was cured a few years ago only untill i over did it
at work and it started again now if you have only had for a short while less than
6 months then you have a fifty Fifty chance that it will go away was what i was told
now seven years later no cure

I am really glad for you but what you posted was well i cant say what
i want to say so good luck and think about what your writing and who your writting it too and your a women.

MikeNZ
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Old 11-16-2013, 09:24 PM #2
tkayewade tkayewade is offline
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I, too, was extremely healthy. I ran every day, ate right, exercised, and did everything to be healthy. I tore a tendon and bam, here we are.

I work hard to stay healthy despite my illness.

I don't want to inflame anyone, but I wish it were that simple. I would be back running triathlons.

TK
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Old 11-16-2013, 09:36 PM #3
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prove it because I reached 3000hrs research in January, I've been in contact with specialists from many countires I've checked the Dutch library which contains all their papers on this and there is nothing in there which claims to cure it, the only ones that claimed this is the 5 day high dose ketamine coma and an Italian Doctor who claimed to have cured himself and his son with his mind but was unable/unwilling to explain how.
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Old 11-16-2013, 09:52 PM #4
Allanira Allanira is offline
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I apologize if my rant started something on here. I didn't mean it to. For 9 yrs 5 months I went undiagnosed except that it was all in my head. Now that I have calmed down I will state things more reasonably. My pain was just around my left knee. I tried everything. I destressed, I ate healthier than I was, and I tried my hardest to exercise. The pain kept getting worse. I went to dr after dr, pt after pt, and no relief. I had 3 failed knee surgeries that has caused it to get worse. I had a spinal block done and it worked. For 3 days. I was a very healthy person before I got this. I was in the military and exercised all the time, I ate right. I didn't have any health issues except a touch of the flu after a flu shot. Yes I would have a drink every now and then or some sweets. I was at a very healthy weight and aced my physical every year. Then while I was stationed in Iraq and running to my tent for gear my knee started hurting and swelled up like I had placed a cantelope under my skin. See there was no cause for my knee to start hurting. That wasn't the first run I had taken. It was my last. After that run I couldn't run, do most of my exercises, or stand and walk without pain. I have everything the Dr's told me to do over the years. I took vitamins, and supplements. I started that 4Fs diet. Nothing helped. I went from a very healthy weight of 125 lbs down to 114 and then down to 100. I have had gastric and pulmonary problems. I have fallen just walking. I never had these problems before. People said I had a cast iron stomach because I could eat anything and not have any problems. Now I have to watch what I eat because I will uave to run to the bathroom. I have to keep promethazine around incase I get nauseous, and mylanta and milk of magnesia. I hate getting sick, I hate that I hurt. What you said earlier sounded like what a lot of Dr's have said to me over the years. It's all in my head. It wouldn't hurt if you didn't think about it. Please think before you post something this controversial on here. These are people that have suffered for uears not months or days. This is mentally a very damaging post. I know I read it 5 times and just about put a hole in the wall because of how mad it made me. I can't afford to put a hole in my wall or to hurt myself and have this spread. I am pregnant and a mom to a 2 yr old. How would that look to him and how much stress do you think Im under? I am not a violent person, and I don't purposely say mean things, but this really got my blood boiling and now I hurt worse.
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Old 11-16-2013, 10:34 PM #5
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Please remember this is one person's theory/thoughts.

Feel free to ignore the thread or use the ignore feature.
sometimes that is the best way to eliminate the upset & stress
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Old 11-17-2013, 04:42 AM #6
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Look guys, I ranted myself originally, and the OP came on and apologised quickly and tried to explain.

Yes what they said was not tactful to say the least, but this is now getting really unpleasant and everyone is repeating the same thing. I'm sure the OP has realized that what they said has gone down about as badly as any first post could...

I only say this because I don't see how this helps us as a community. We all agree on this. How about we move on and let things quiet down?

No offence to anyone, and of course everyone is entitled to their say, but I hope you know what I mean

Try and have a good day lovely folk x

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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