Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-22-2013, 02:18 AM #1
nw31705 nw31705 is offline
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Default Crazy Pain

I have had RSD now for 5 years. It started from a fall down a flight of stairs. The pain originated in my right great toe and has now spread bilaterally as well as my entire right side. Over the years I have experience several different things, but within the last 2 years I have noticed that I cannot hang my legs off the side of anything without feeling intense pain and numbness and tingling. It has gotten to the point were I cannot sit up in the bed to watch T.V because the same thing happens. I was wondering if anyone else experience this. I even have pain if I sit on the toilet too long. Any suggestions would b pleasing.
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moosey2me (11-22-2013)
Old 11-22-2013, 06:06 PM #2
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Confused how do we hang in there?????

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Originally Posted by nw31705 View Post
I have had RSD now for 5 years. It started from a fall down a flight of stairs. The pain originated in my right great toe and has now spread bilaterally as well as my entire right side. Over the years I have experience several different things, but within the last 2 years I have noticed that I cannot hang my legs off the side of anything without feeling intense pain and numbness and tingling. It has gotten to the point were I cannot sit up in the bed to watch T.V because the same thing happens. I was wondering if anyone else experience this. I even have pain if I sit on the toilet too long. Any suggestions would b pleasing.
I remember last year I was having the same problem when I sat in bed or even in the chair watching tv.It felt like it was due to how my my posture.If I sat with a curved back it started pinching right away in the hip then the rest of the issues started..burning,pain,and swelling..It was terrible.So long story short,i braced my self better with pillows.I also bought a firm memory foam bed.That helped a lot.i have trouble sleeping on my side,I usually sleep flat on my back,head on pretty flat pillow too.. so I guess watch how your bodies posture..Hope it gives you something to think about..best of luck..
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