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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-20-2013, 09:44 AM | #1 | |||
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Freebird36 had posted this link in an earlier thread http://www.youtube.com/watch?v=6_Nzh...ature=youtu.be
It's an update on treatments for RSD/CRPS. I found it interesting. In this video the speaker mentions a site called trend consortium. http://www.trendconsortium.nl While on this site I found this: Diagnosis tool for CRPS http://www.trendconsortium.nl/diagnosis/ I thought this was all very interesting. Thanks Freebird36!!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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11-20-2013, 08:52 PM | #2 | ||
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Trend are a group of 7 dutch University Hospitals and 2 pharmacuetucal companies looking into CRPS, nothing else like it anywhere else in the world
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11-21-2013, 03:36 AM | #3 | ||
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As a Brit, this is the most interesting page for me....
http://www.trendconsortium.nl/crps-e...course-of-crps ...because they state that out of 102 sufferers over 6 years, 16% still showed progression of the disease, and 31% still couldn't work. Not quite the same as the newest leaflet produced after the Bath patient conference (which I couldn't attend....grrr ) which says that around 7% of patients experience spread.... I wish these researchers and doctors and specialists and everyone would just start actually TALKING to each other and AGREEING about some stuff! I hate the way our NHS is putting such a false hope out there for new patients - I remember being told insistently and repeatedly by my first pain doc that I could beat this if I tried hard enough and put the work in...that it was up to me.... I mean really. FFS. Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | Vrae (11-22-2013) |
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