Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-21-2013, 12:15 PM #1
RSD ME RSD ME is offline
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Sometimes I get burning sensations on different parts of my body that come and go. It can also be described as a stinging sensation. I get them on my ears and my neck and near my eyes. I also have burning and stinging on the sores I get on my body, like my ears and neck and arms and back and head and buttocks. (bed sores). They come and go too. I don't know if its the rsd spreading or just nerves misfiring. I know that I have rsd spread on my limbs and stomach because I have external as well as internal symptoms and pain that never goes away. It's a contant feeling of burning and stinging. I hope you feel better soon. Take care.
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Old 11-21-2013, 03:56 PM #2
Brambledog Brambledog is offline
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I've had some odd sensations on my face at times, particularly my left cheek feeling hot and sore. My CRPS is predominantly on the left side of my body, so I worried that it was spread, but I've only had it very rarely a few times, and it hasn't progressed to the constant pain of normal CRPS areas, so I've tried to ignore it

I get some odd little nervy sensations in all sorts of places, and they aren't spread. I read that because the CRPS is sending and receiving weird signals throughout your nerves and brain, that those little odd pains or numbness or stabs or whatever are just kind of nerves misfiring rather than true spread. It's only if it becomes regular in one place, and very often, that you should start to suspect a new area of concern...

Good luck and try to smile wherever possible! Hope tomorrow is better than today

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

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