Hi Jinmi
I really would like to thank you and Iain for all the work you have done to try and get action to help RSD/CRPS sufferers. It is a lot more than I expected when I first contacted Iain and shows that there are a few MP's who really do care about the people. Unfortunately I cannot say the same about Mr Lamb,
When he told me after the debate that if I did a letter he would go through it with Iain and see what could be done I thought he was a man of honour and there was hope for all the sufferers diagnosed and un/misdiagnosed in this country. I know he is a busy man but you have all been back 12 weeks now so I cannot believe he could not have found the time to read my letter and contact Iain. What will it take, a labour MP standing up in the house and asking why knowing there may be as any as 480,000 sufferers of the worlds most painful incurable condition of whom 25% are liable to commit suicide in this country for XXX no of weeks has he taken no action despite telling a sufferer he would, or one asking why having been given steps XXX no of weeks ago to help 480,000 sufferers which would incur virtually no increase in the DOH or NHS budget but could save the country between £3 & 4 Billion a year has he taken no action. Tell him that this will happen because I intend to post this on the internet and I don't think many sufferers are going to be happy with him.
Kevin