Quote:
Originally Posted by nancynickless
Hi,
I have had symptoms of PN for many years and as many as 32 Drs. misdiagnosed my condition even resulting in a AVM and anyersm in my brain resulting with brain surgery which turned out to not be related to PN. I have had the spasms you are talking about in my eyes, stomach, legs. It is very scary but now that I have a diagnosis at least I know that I will have varied symptoms. I cannot even work as you, having pain levels of 10 most of the time. How you can do it must be very difficult.
If anyone has had an extreme loss of weight in a few months and pain in the trunk of your body could you please tell me. I was so sick with this that I could not eat. Also, does anyone take as much meds as I do; Lyrica, Cymbalta, Morphine, Doxopin, Temazepam?
I was diagnosed finally with a biopsy as everything else had been ruled out. Pretty much matched symptoms on line and requested a biopsy per what was stated the only way to get an accurate diagnosis. Having extreme loss of nerve fibers was apparent and I have worsened throughout the years.
I always felt that the Dr.s thought I was psycho symatic so those of you who are reading this and have the many symptoms discussed in this forum don't let them tell you that you do not have anything wrong. Have that skin biopsy and save yourself many years of Dr. visits.
Being years old I have heard it all from specialists to natureopathics none were able to help me. The meds I take are the only thing that works.
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I am so glad to hear from others.I now take Celebrex,clonidine,citalopram,amitripyline,and hydrocodone when need ,plus multi vit..was taking meloxicam for my stomach but it started bad pain in my stomach so stopped..I wa on a cream too,but to apply was terrible
katamine with different meds. in it..I said to my hubby its hard working,but I do not want to give up yet..I cannot remember the last day I had no pain..Its so sad to think that way..Tonight was terrible,I was so depressed.I had a walk with my dogs felt better about things,but the pain was worse.But I made my buddy happy.She has it worse.she has had battles with breast cancer .had both removed..So I had her inmind of lifting her up.I showed her my babies..DOGS...told her the story of Khloe taking my doll and pulling her across the floor.The doll is bigger than her.She is a yorkie..it was so funny..She was laughing and made her and I feel better..love those babies,,My heart aches for you..Sounds like you been through so much..I cannot quit understand doctors sometime..I feel like calling my doctor,and telling him about things getting worse,but I can already hear him say why?what do you want me to do?So why bother..Seams like doctors are far and in between that understand RSD..I will pray for you..Thank you..
12-04-2013, 12:59 AM
to everyone I am so glad I am not alone in pain and spams, I literally had spams that are looking like seizures. I'm scared my doctor is worthless.
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