Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-03-2013, 11:41 AM #1
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heatherg23 heatherg23 is offline
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THey look at your symptoms to see if it fits. The second I told my doctor that I had an accident with my feet and my feet feel like their on fire he said it's probably RSD. I went to 3 other doctors to confirm it and they all came with that conclusion.

Pain is the other symptom that I have but there are many others. There's no test to do that can show that you have it. You've had enough tests you don't want another i'm assuming.

I had 3 nerve blocks that didn't work but EVERYONE is different. I didn't educate myself about RSD which I should have done before doing any other the things I did. I would research whatever it is that they want you to do.

Good luck to you!!!
Heather
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RSD since 8/2005
Originally in left and right foot
Spread in 2006 and Jan 2014
Both legs, arms.
Chronic pain going back to 1992

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Old 12-04-2013, 06:16 AM #2
_dreamer_ _dreamer_ is offline
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One more thing...I was also (a few years ago) diagnosed with Reynaud's disease in my feet.
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Old 12-04-2013, 02:26 PM #3
Brambledog Brambledog is offline
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I don't know about reynauds disease (other than that it's sometimes associated with or confused for CRPS), but for CRPS its definitely a 'use it or lose it' approach... Keep walking as much as you are able to without making your pain too bad - a small increase in pain is understandable, but a big jump is bad news. It's that old chestnut of 'pacing'.

Just had to get mine elevated with socks off Bright red and hot. You could fry an egg or two on the darn things. Oh well.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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