Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-12-2013, 09:48 AM #11
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The cold really kicks my behind. Flares galore.

I'm affected both inside and outside...but only because the outside being cold makes the inside cold. At home I have a space heater in front of the couch where I sit ALL the time (when I'm not working or doing other life necessities). This at least ensures this one room in the house is bearable. I even sleep there during this time of year so that I can stay toasty warm.

The space heater means I don't have to wear socks or a heating pad when I am at home (or scarf or gloves or bulky clothes)...and that is when I am happiest where my RSD is concerned. I am extremely sensitive to touch and wearing those extra layers does hurt. I do it when I am outside my little heat bubble...because the pain caused by the cold is so much worse than the pain caused by the extra layers of clothes...but I am in the best shape when I am warm and have as little touching my skin as possible.

To help combat the pain I do use the following when I am not able to be in front of my space heater: heating patches, lidocaine cream, TENS unit, hot baths with Epsom salts, and ultrasound heat therapy. I do also wear socks, gloves, and a scarf to protect my RSD areas when I am outside of the house (even when I am at work).
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Old 12-12-2013, 10:28 AM #12
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you know this is exactly why I visited to day..

last night .. in my house my feet and hands and legs turned bright red, and the burn was unbearable , and the areas that are purple or brown turned BLACK. .. and today I went outside dressed like an eskimo.(yes socks gloves and cloths hurt but I bundle to avoid the cold effect) it didn't matter . this was at 9 this morning and I still have increasing pain levels and that cold burn is keeping those tear in my eyes.. i am finding it hard to escape any reaction at this time.. I also use a heating blanket.. has any-one found a way around this ??
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Old 12-12-2013, 02:58 PM #13
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Today my leg is arctic. It really feels as though I've got it stuck in a snowdrift... That cold burning pain is just the worst thing at the moment because it just doesn't stop, although every now and then the CRPS sticks in a stabbing pain somewhere to make me yelp. Nice.

I've been wrapped in a blanket all the time today when I've not been moving around, but I'm still arctic. It just will not warm up. The problem is that I know that at some random point, within a few minutes it will turn from ice to fire, and then I'll have a whole new set of problems...

I just feel so crappy today and it's wearing me out. I hate hate hate the pain.

I swear it's because the weather here is on the change, we are going from cold dry settled weather to wet rainy horrible milder weather. And I feel it in every cell of my body.

Bram.
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Old 12-12-2013, 06:03 PM #14
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My wrists and feet and right hip are killing me today. Partly because of Christmas shopping yesterday, partly because I'm trying to cut back on my pain meds a little, and partly because of the cold weather. It's frigid out here today and we're expecting a lot of snow this Saturday. The burning pain is relentless. I'm so tired of it. It never goes away.
I'm sorry your having such a bad day Bram. I hope you and everyone else suffering from this cold and rsd feel better soon.
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Old 12-17-2013, 05:54 PM #15
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I don't know which is worse; the worrying about getting even colder weather or the extra stress and pain that always comes in the wintertime.
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Old 02-26-2014, 02:26 AM #16
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Default rsd and weather.

RSD affects us all differntly. The one we all have in common with rsd is, we are all in pain. Heat affects me more than cold weather. In march of 2012 I moved from CA to IL. In CA I was pretty much bed ridden. The move from a warmer place to a colder place helped my RSD very much. Also another thing that helped me is I am not under so much stress.
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