Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-11-2013, 11:40 AM #1
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Hi Heather. I definitely feel more pain when it's extremely cold or hot. I can't put socks on my feet when they burn because it hurts, but a heating pad does help. I don't get it either, but it helps. As for my hands, they get very cold and I can put gloves on them. I just need to keep the gloves off my wrists because they burn and it hurts. I put volatren gel on them when this happens. I hope you feel better soon and take care.
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Old 12-11-2013, 01:07 PM #2
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I've been wearing my Uggs most of the time. My feet still feel like there is frostbite, even if they are warm. I can still wear socks if I need to, but avoid it if I have to.

I have been having a really hard time shaking off the cold if it gets to me, it gets down to my bones. Nothing helps at all, except getting under a ton of blankets and waiting until my body heats up on it's own.

I have a mat for under my desk at work that can help warm my feet. It's good, but I kind of wish I could bring in a heated blanket instead.
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Old 12-11-2013, 01:36 PM #3
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I understand the "oxymoron", but it's the same for me my wrist feels
like it's burning from the inside out. Sometimes like hot sauce in my veins and sometimes like fire, when actually it's a few degrees colder than my good arm.
Yes, heat helps and cold hurts ironically.
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Old 12-11-2013, 05:07 PM #4
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I live in NM and the cold gets to me in or out. I just deal as much as I can and have a really nice heated throw on my couch. My feet get cold so fast its not funny. My socks and shoes hurt. The only ones I can wear consistently are my slippers. I'm hurting now too.
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Old 12-11-2013, 05:41 PM #5
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Sometimes I struggle to tell whether my foot is intensely cold or hot...the burn feels so similar at its extremes....

I tend to find that if my foot gets icy cold and I don't deal with it (heating pad, warm blanket etc) to get the temperature fairly normal quickly, then later it will suddenly fire up and I get the petrol on fire feeling like my foot is roasting in my sock/shoe. It's normally an evening thing. Saying that, sometimes it will just fire up anyway!! Generally, very cold ends up being very hot later. The burn lasts a good 1-3 hours depending, sometimes more. That's when a warm Epsom foot soak helps...

I hate cold. If I get chilled, my whole body hurts now and then all my cripsy symptoms get worse. I dress like the Michelin Man at the moment to go out, and in the house I wear hill-walking trousers and about five layers with a fleece!! Mental.

Good luck guys

Bram.
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Spread to entire left leg and foot, left arm, right foot.

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Old 12-11-2013, 11:09 PM #6
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Yup! This all sounds familiar! My symptoms are significantly worse in the cold weather, and sometimes when it rains. My calf and foot get very cold and I use warm bath and heating pad. I am lucky I don't have allodynia so warm socks work well too. When I wake in the morning my foot is red and hot and it gets pale and cold when I weight bear on it. Does anyone have numbness? It feels like my foot has been in a bucket of ice water - painfully cold numb.
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Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
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Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 12-12-2013, 03:33 AM #7
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I did a poll on weather affecting CRPS symptoms....new members, if you can please take part - the numbers were getting interesting to say the least, and it makes you feel a tiny bit better to know you're not alone!!

http://neurotalk.psychcentral.com/sh...t=Weather+CRPS

Thanks, Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.

Last edited by Brambledog; 12-12-2013 at 03:36 AM. Reason: adding link
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