Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-11-2013, 01:07 PM #1
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I've been wearing my Uggs most of the time. My feet still feel like there is frostbite, even if they are warm. I can still wear socks if I need to, but avoid it if I have to.

I have been having a really hard time shaking off the cold if it gets to me, it gets down to my bones. Nothing helps at all, except getting under a ton of blankets and waiting until my body heats up on it's own.

I have a mat for under my desk at work that can help warm my feet. It's good, but I kind of wish I could bring in a heated blanket instead.
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Old 12-11-2013, 01:36 PM #2
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I understand the "oxymoron", but it's the same for me my wrist feels
like it's burning from the inside out. Sometimes like hot sauce in my veins and sometimes like fire, when actually it's a few degrees colder than my good arm.
Yes, heat helps and cold hurts ironically.
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Old 12-11-2013, 05:07 PM #3
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I live in NM and the cold gets to me in or out. I just deal as much as I can and have a really nice heated throw on my couch. My feet get cold so fast its not funny. My socks and shoes hurt. The only ones I can wear consistently are my slippers. I'm hurting now too.
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Old 12-11-2013, 05:41 PM #4
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Sometimes I struggle to tell whether my foot is intensely cold or hot...the burn feels so similar at its extremes....

I tend to find that if my foot gets icy cold and I don't deal with it (heating pad, warm blanket etc) to get the temperature fairly normal quickly, then later it will suddenly fire up and I get the petrol on fire feeling like my foot is roasting in my sock/shoe. It's normally an evening thing. Saying that, sometimes it will just fire up anyway!! Generally, very cold ends up being very hot later. The burn lasts a good 1-3 hours depending, sometimes more. That's when a warm Epsom foot soak helps...

I hate cold. If I get chilled, my whole body hurts now and then all my cripsy symptoms get worse. I dress like the Michelin Man at the moment to go out, and in the house I wear hill-walking trousers and about five layers with a fleece!! Mental.

Good luck guys

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Old 12-11-2013, 11:09 PM #5
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Yup! This all sounds familiar! My symptoms are significantly worse in the cold weather, and sometimes when it rains. My calf and foot get very cold and I use warm bath and heating pad. I am lucky I don't have allodynia so warm socks work well too. When I wake in the morning my foot is red and hot and it gets pale and cold when I weight bear on it. Does anyone have numbness? It feels like my foot has been in a bucket of ice water - painfully cold numb.
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Aug 2011 Stabilization of spine at L3/L4/L5.
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Old 12-12-2013, 03:33 AM #6
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I did a poll on weather affecting CRPS symptoms....new members, if you can please take part - the numbers were getting interesting to say the least, and it makes you feel a tiny bit better to know you're not alone!!

http://neurotalk.psychcentral.com/sh...t=Weather+CRPS

Thanks, Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

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.

Last edited by Brambledog; 12-12-2013 at 03:36 AM. Reason: adding link
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Old 12-12-2013, 09:48 AM #7
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The cold really kicks my behind. Flares galore.

I'm affected both inside and outside...but only because the outside being cold makes the inside cold. At home I have a space heater in front of the couch where I sit ALL the time (when I'm not working or doing other life necessities). This at least ensures this one room in the house is bearable. I even sleep there during this time of year so that I can stay toasty warm.

The space heater means I don't have to wear socks or a heating pad when I am at home (or scarf or gloves or bulky clothes)...and that is when I am happiest where my RSD is concerned. I am extremely sensitive to touch and wearing those extra layers does hurt. I do it when I am outside my little heat bubble...because the pain caused by the cold is so much worse than the pain caused by the extra layers of clothes...but I am in the best shape when I am warm and have as little touching my skin as possible.

To help combat the pain I do use the following when I am not able to be in front of my space heater: heating patches, lidocaine cream, TENS unit, hot baths with Epsom salts, and ultrasound heat therapy. I do also wear socks, gloves, and a scarf to protect my RSD areas when I am outside of the house (even when I am at work).
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Old 12-12-2013, 10:28 AM #8
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you know this is exactly why I visited to day..

last night .. in my house my feet and hands and legs turned bright red, and the burn was unbearable , and the areas that are purple or brown turned BLACK. .. and today I went outside dressed like an eskimo.(yes socks gloves and cloths hurt but I bundle to avoid the cold effect) it didn't matter . this was at 9 this morning and I still have increasing pain levels and that cold burn is keeping those tear in my eyes.. i am finding it hard to escape any reaction at this time.. I also use a heating blanket.. has any-one found a way around this ??
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Old 02-26-2014, 02:26 AM #9
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Default rsd and weather.

RSD affects us all differntly. The one we all have in common with rsd is, we are all in pain. Heat affects me more than cold weather. In march of 2012 I moved from CA to IL. In CA I was pretty much bed ridden. The move from a warmer place to a colder place helped my RSD very much. Also another thing that helped me is I am not under so much stress.
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