Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 12-13-2013, 05:18 PM #1
chaos's Avatar
chaos chaos is offline
Member
 
Join Date: Jun 2012
Location: NorCal
Posts: 332
10 yr Member
chaos chaos is offline
Member
chaos's Avatar
 
Join Date: Jun 2012
Location: NorCal
Posts: 332
10 yr Member
Default Best bed to buy for CRPS?

Mine is in my feet mostly. I'm working on getting a pain pump. We need a new bed and I finally can get one (my medical malpractice suit finally settled). We have a basic mattress right now, with springs. I sat on a few the other day, but didn't really spend time in there as DH was only getting coffee next door to the store, and the salesguy was creepy.

There were a few I felt I couldn't get out of on bad days. I know when I get the pump I'll have to kind of roll out of bed for a while (I assume). I think I need to stay with the spring kind and a pillow top. Do any of you have any good or bad experiences with memory foam or latex? I'm not sure if it would be good for my body or not. I am a side sleeper, DH on his back.

I'm going to go out to this company and look at their beds:
http://www.thenaturalmattressstore.c...x-with-springs
They're chemical free, which I think it a really good thing to use with the CRPS. There are a few other places that sell mattresses that don't have so many chemicals, but this place is close-ish and not a horrible price for what it is.

I'm stopping by Ikea this weekend, their mattress doesn't have the big bad chemical, but still has some.

Getting a sheet set is going to be just as bad of an issue, trying to find something that is soft and that I like.
chaos is offline   Reply With QuoteReply With Quote

advertisement
Old 12-13-2013, 05:30 PM #2
Jenna Delaney Jenna Delaney is offline
Junior Member
 
Join Date: Dec 2009
Location: MN
Posts: 50
10 yr Member
Jenna Delaney Jenna Delaney is offline
Junior Member
 
Join Date: Dec 2009
Location: MN
Posts: 50
10 yr Member
Default

Quote:
Originally Posted by chaos View Post
Mine is in my feet mostly. I'm working on getting a pain pump. We need a new bed and I finally can get one (my medical malpractice suit finally settled). We have a basic mattress right now, with springs. I sat on a few the other day, but didn't really spend time in there as DH was only getting coffee next door to the store, and the salesguy was creepy.

There were a few I felt I couldn't get out of on bad days. I know when I get the pump I'll have to kind of roll out of bed for a while (I assume). I think I need to stay with the spring kind and a pillow top. Do any of you have any good or bad experiences with memory foam or latex? I'm not sure if it would be good for my body or not. I am a side sleeper, DH on his back.

I'm going to go out to this company and look at their beds:
http://www.thenaturalmattressstore.c...x-with-springs
They're chemical free, which I think it a really good thing to use with the CRPS. There are a few other places that sell mattresses that don't have so many chemicals, but this place is close-ish and not a horrible price for what it is.

I'm stopping by Ikea this weekend, their mattress doesn't have the big bad chemical, but still has some.

Getting a sheet set is going to be just as bad of an issue, trying to find something that is soft and that I like.

I hear foam beds make a person sweet and with rsd in my foot I sweet a lot so I would say no foam bed
Jenna Delaney is offline   Reply With QuoteReply With Quote
Old 12-13-2013, 06:13 PM #3
heatherg23's Avatar
heatherg23 heatherg23 is offline
Member
 
Join Date: Feb 2008
Location: SouthEast Wisconsin
Posts: 106
15 yr Member
heatherg23 heatherg23 is offline
Member
heatherg23's Avatar
 
Join Date: Feb 2008
Location: SouthEast Wisconsin
Posts: 106
15 yr Member
Default

Hi

My bed isn't from that company but I have the sleep number bed and it's the only one I can lay on. Well, I have back problems to but who doesn't want to be extremely comfortable. I spend every minute of the day on it. Love it!!
Heather
__________________
---------------------------------------------------
RSD since 8/2005
Originally in left and right foot
Spread in 2006 and Jan 2014
Both legs, arms.
Chronic pain going back to 1992

.
heatherg23 is offline   Reply With QuoteReply With Quote
Old 12-13-2013, 06:20 PM #4
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Chaos

I have a cooling gel mattress. Never get too warm or cold for that matter. It is like Tempur pedic, but an off brand. Went to Amazon.com of all things. Price was very reasonable too. Best choice for me. Maybe try one out. ginnie
ginnie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jenna Delaney (12-13-2013)
Old 12-13-2013, 06:45 PM #5
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

I have to apologise massively in advance, because this just came to mind and I just want to share my small, wry smile with you.... I was sitting here yawning away because I'm so tired, and I saw the thread title....

...and I thought...

One that has been sprinkled with chloroform.

Sorry, but some nights that is what I long for Not in a dangerous way obviously, but in that Agatha Christie-esque kind of way where a glamorously dressed young chap or gal needs to be rendered unconscious for a short time...(they always made it look gentle and kindly )

Anyway, hope I haven't offended anyone in the middle of this useful discussion.

Bram (very tired and off to bed).
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (12-13-2013), Nanc (12-13-2013)
Old 12-13-2013, 07:20 PM #6
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Default

Bram! You are so baaaaaad! You might want to stick to lavender aromatherapy ;-)
Lottie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brambledog (12-14-2013)
Old 12-13-2013, 07:22 PM #7
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Default

I love my Temperpedic "Cloud" very much. I have serious spine issues and it has been great for me. The only down side is that it can make you too warm, so if that is a big issue for you it might not be the best choice. I bought mine about 4 years ago so maybe they have better choices available now that don't make the person so warm. Good luck!
Lottie is offline   Reply With QuoteReply With Quote
Old 12-13-2013, 07:28 PM #8
chaos's Avatar
chaos chaos is offline
Member
 
Join Date: Jun 2012
Location: NorCal
Posts: 332
10 yr Member
chaos chaos is offline
Member
chaos's Avatar
 
Join Date: Jun 2012
Location: NorCal
Posts: 332
10 yr Member
Default

Yeah, I don't want one that makes me sweat, I have had issues with that for about a year now.

Bram - yeah, I like your idea. If only knocked out sleep actually gave me good sleep.
chaos is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brambledog (12-14-2013)
Old 12-13-2013, 08:06 PM #9
murgir murgir is offline
Member
 
Join Date: Nov 2013
Location: Kentucky
Posts: 109
10 yr Member
murgir murgir is offline
Member
 
Join Date: Nov 2013
Location: Kentucky
Posts: 109
10 yr Member
Default

I have an adjustable bed (head and/or feet rise with a remote) . It is a memory foam mattress with gel. Have never been hot or cold on it. I have a waterproof mattress topper on it too. I like it. I think it is a simmons brand. My mattress if firm you do not sink into it . States its very comparable to Tempur Pedic. 1/2 the cost. Today was my worse day of pain with RSD after evaluation for ending my occ. therapy (possibly). I think from all the squeezing to determine the strength in each hand, finger, ect. RSD started after carpel tunnel surgery on right but pain is running up my right arm across my upper back and down my left arm. My chest and neck also feel strange. Not a good sign for things to come since I have only had it 2 1/2 months. I have not had the pain YET that some people have to determine if it is a good bed for that but love to be able to raise bed to watch tv or the feet to take stress off my back. I am sure after today I will find out.
murgir is offline   Reply With QuoteReply With Quote
Old 12-13-2013, 08:29 PM #10
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

Quote:
Originally Posted by Brambledog View Post
I have to apologise massively in advance, because this just came to mind and I just want to share my small, wry smile with you.... I was sitting here yawning away because I'm so tired, and I saw the thread title....

...and I thought...

One that has been sprinkled with chloroform.

Sorry, but some nights that is what I long for Not in a dangerous way obviously, but in that Agatha Christie-esque kind of way where a glamorously dressed young chap or gal needs to be rendered unconscious for a short time...(they always made it look gentle and kindly )

Anyway, hope I haven't offended anyone in the middle of this useful discussion.

Bram (very tired and off to bed).
Being unconscious for a short time sounds good to me.
__________________
RSD ME
.

Last edited by RSD ME; 12-13-2013 at 08:53 PM. Reason: IDK
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brambledog (12-14-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
crps David44 New Member Introductions 6 01-30-2013 02:23 AM
Rsd/crps Freshh20 Reflex Sympathetic Dystrophy (RSD and CRPS) 9 10-26-2012 06:15 PM
Crps! ImNoSuperGirl Chronic Pain 11 11-11-2009 05:29 PM
Crps Greedy Reflex Sympathetic Dystrophy (RSD and CRPS) 6 07-19-2009 06:32 AM
CRPS or TOS? TraceyW Reflex Sympathetic Dystrophy (RSD and CRPS) 12 04-06-2009 08:10 PM


All times are GMT -5. The time now is 07:01 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.