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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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12-15-2013, 10:23 PM | #1 | |||
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It's only about 8 minutes but I thought it was pretty good, especially for someone new to CRPS
http://www.youtube.com/watch?v=J6--CMhcCfQ
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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12-16-2013, 04:18 AM | #2 | ||
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Thanks so much for posting this Vrae - It's a really good explanation......but.....
I wish he had mentioned the name CRPS/RSD itself. I wish he had said that an awful lot of us suffering from this disease DO NOT GET BETTER. It's lovely that Chandler got well enough to do a back-flip, but most of us don't get that level of recovery, our pain is not managed, or bodies do not heal themselves. This talk would leave anyone who didn't know about CRPS thinking that it could be treated fairly easily and we could be back to normal if we just did this intensive physio programme. In terms of explaining our complex pain system clearly, top marks, good man. In terms of raising any kind of awareness about what this thing can do and does do to so many of us, and how impossible it is to manage, and how much we just want some understanding and tolerance....I'd have to be more stingy with the marks lol Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | moosey2me (12-16-2013) |
12-16-2013, 09:37 AM | #3 | |||
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It was something I found with regard to chronic pain and not CRPS specifically. I should have prefaced that. Sorry. Besides, I've been on some pretty heavy drugs in the last 24+ hours, so I should probably watch it again and see if it is something I should have posted here at all.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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"Thanks for this!" says: | moosey2me (12-16-2013) |
12-16-2013, 10:36 AM | #4 | ||
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Very good video. It did educate, and now I know how CRPS presents. It helps me to help others. thank you so much. ginnie
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"Thanks for this!" says: | moosey2me (12-16-2013) |
12-16-2013, 12:24 PM | #5 | |||
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Quote:
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12-16-2013, 02:05 PM | #6 | ||
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I'm glad you posted it, anything new about the whole subject of chronic pain is interesting... Thanks, Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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12-16-2013, 05:33 PM | #7 | |||
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Quote:
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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"Thanks for this!" says: | Brambledog (12-16-2013) |
12-16-2013, 05:41 PM | #8 | ||
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Quote:
Hope you're doing ok today chick I know it's been rough for you recently too. Bram.
__________________
CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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12-16-2013, 06:36 PM | #9 | |||
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