Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-18-2013, 12:47 AM #1
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Default Check out this video

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Originally Posted by Nanc View Post
Hello All! Hope you guys are having a lower pain day. I know many of you on here have experienced tremors. Before this evening, I only had them once in my left arm/hand and it was brief. Well, tonight my husband's carpool buddy came home with him to meet me. She is a very sweet girl around 24 years old. She brought me a nice Christmas gift too Anyway, the three of us are sitting here talking and my left arm started trembling and my husband saw it, he had this look of horror on his face. I tried to hold it still with my right hand and that arm started shaking...I have not experienced this before and it scared me (and him).

I have also been having more trouble with my right eye. When the right side of my face flares, of course my eye swells and gets kinda goopy. Well, here lately I have moments where I can't open it. This happens mostly in the morning, my left eye will be open but my right eye is closed and takes a while before it will open on its own. It is very odd.

I do not like this new crap going on...tremors, choking, coughing, my eye....ugh Enough already!!!
Hi Nanc,

I get tremors and sometimes they are pretty severe. I can look like this women in the video. I found this video http://www.youtube.com/watch?v=qM7dTyEzSIQ and my husband will apply pressure as shown in the video and IT WORKS/helps! It's crazy how it will help stop them. I don't have the belt but wish I did, and I don't use the biting on a tongue depressor but it still helps to have pressure applied in the area shown in the video. I have had tremors today and used this technique to get things to settle down.

Tremors are also the reason I take gabapentin, along with the fact that it helps my neuropathic type pain (shocks). Maybe this will help for you too. Mine is mostly in my legs, but my arms and legs can all get going at the same time. It's exhausting on the body to tremor. It can make your muscles feel VERY weak.

The choking, for me is also neurological. Coughing, not sure about that one. My eyes don't get goopy, but the water like crazy when I am flaring. My sensory gets involved too, specifically my ears. I become VERY sensitive to sounds and have a ringing in my ears.

I sure hope things settle down soon hon and I hope the video helps!

PS... you can go to 4:40 on timeline and watch her in her doctor's office. It's a little more clear.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Brambledog (12-18-2013), Nanc (12-18-2013)
Old 12-18-2013, 07:20 AM #2
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Thank you for posting this video! Does anyone know what DOT stands for (it is in the title of the video).
Also, NANC - is it possible that any of your symptoms are related to a med you are taking (side effect)? Just a thought. I am sure this is scary for you, and I hope it resolves quickly.
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 12-18-2013, 08:49 AM #3
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Quote:
Originally Posted by Lottie View Post
Thank you for posting this video! Does anyone know what DOT stands for (it is in the title of the video).
Also, NANC - is it possible that any of your symptoms are related to a med you are taking (side effect)? Just a thought. I am sure this is scary for you, and I hope it resolves quickly.
Hi Lottie, What a great question! I had not noticed the acronym before but it is Sacro Occipital Technique (SOT). I found this about it http://www.chiroaccess.com/Articles/...spx?id=0000291

Hope this helps!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 12-18-2013, 10:54 AM #4
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Quote:
Originally Posted by Lottie View Post
Thank you for posting this video! Does anyone know what DOT stands for (it is in the title of the video).
Also, NANC - is it possible that any of your symptoms are related to a med you are taking (side effect)? Just a thought. I am sure this is scary for you, and I hope it resolves quickly.
Hi Lottie! No, it wouldn't be a med side effect. I do not take anything for my RSD symptoms. Sometimes I do take promethazine (nausea from demerol) and demerol for pain, that gives me a headache so I try not to take it unless I HAVE to. It is scary...my husband was talking about it again last night. I think it kinda freaked him out.
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Old 12-18-2013, 10:48 AM #5
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Quote:
Originally Posted by Vrae View Post
Hi Nanc,

I get tremors and sometimes they are pretty severe. I can look like this women in the video. I found this video http://www.youtube.com/watch?v=qM7dTyEzSIQ and my husband will apply pressure as shown in the video and IT WORKS/helps! It's crazy how it will help stop them. I don't have the belt but wish I did, and I don't use the biting on a tongue depressor but it still helps to have pressure applied in the area shown in the video. I have had tremors today and used this technique to get things to settle down.

Tremors are also the reason I take gabapentin, along with the fact that it helps my neuropathic type pain (shocks). Maybe this will help for you too. Mine is mostly in my legs, but my arms and legs can all get going at the same time. It's exhausting on the body to tremor. It can make your muscles feel VERY weak.

The choking, for me is also neurological. Coughing, not sure about that one. My eyes don't get goopy, but the water like crazy when I am flaring. My sensory gets involved too, specifically my ears. I become VERY sensitive to sounds and have a ringing in my ears.

I sure hope things settle down soon hon and I hope the video helps!

PS... you can go to 4:40 on timeline and watch her in her doctor's office. It's a little more clear.
Thanks for the video Vrae...very interesting!! Maybe we could try the pressure, but don't think I could handle biting on the depressor since the RSD in my face. I cannot take gabapentin, I have tried it a couple of times and had bad reactions to it. I actually cannot take or tolerate any of the meds they use for RSD or nerve issues. It really stinks to have to "tough" this mess out.

My ears ring too, constantly! I have also noticed more recently that noise sets me off. We went to a store at the mall last week to get a gift card for my niece. The music was so loud, my husband saw my face and the tears welled up, it was awful!

Anyway, thanks again!
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