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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Chaos, I'm so sorry you've had a rotten time of it after working so hard.
He does indeed sounds like he's been a giant pain in the behind rather than your help and support at such a special time. It's not fair and it sounds as if you put a lot of effort in for everyone and got very little out. It's so sad when even your family don't understand what you're going through. Did you tell them how hurt you were that they didn't bother with gifts etc for you, or just some help? It's hard when you have a younger child because they need a little help and encouragement with gift buying, but you shouldn't have to do that yourself as well... I so understand you wanting your old body and self back, and just to be able to do the things you used to. I feel the same. I'm lucky to have a supportive husband, who although he does a giant fail every now and then is pretty darn good day to day, but we went through a bad time early on and I still get big blues when I don't want to have to ask for things I should be able to do myself...I bet we all do. I hope you can maybe sit your family down and explain that you just can't carry on like this, that you can't do what you want to anymore, and that you need their help around the house regularly. A list of chores up on a wall/door for them to choose from and tick off works ok for me, and means I'm not actually having to keep asking them (some smaller chores I mark specifically for my youngest who is 10, so the others don't just do those!!). I nudge if a day or two goes by without anything coming off it, but I think they feel a little less nagged ![]() Anyway, I'm glad you got to have a bit more of your tattoo done - what is it you're having, it must be big?! Take care of yourself, and I hope things improve for you soon. I'll be hoping the New Year brings you a fresh start in your home ![]() Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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#2 | |||
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In the past couple weeks he's just gotten extra jerky. His responses to me have been "have DD do it" or "stop nagging". I have written stuff down before and it ranges from never doing it, doing a little or taking the note down and throwing it away. I complained about our bedroom to him and he started complaining about DD. Um, she has nothing to do with what I asked. I haven't been able to get him to focus on ME. Sometimes he is super helpful, just not this week.
I even gave him a list of stuff he could get for me at Target. He got frustrated with being in there and left. Mentioned something about a video game and I told him that NO, don't get me that. I rarely play video games. He's just thinking about him, always. He's getting accupunture tonight and it better help or I'll throw a knife at him. I'm getting this: http://www.thepinupfiles.com/elvgren/ELVGREN_img_04.jpg But zombie, she'll be greenish and has stiches across her body. It's on my thigh and takes up a good part of it. I've had about 4 hours of work done on it so far. I need her body colored in still, I got the clothing, shoes and lips colored in last weekend. I'm kind of like "whatever, it's going to hurt anyway, just do it" camp. It didn't make my CRPS spread. |
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#3 | ||
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Hi chaos
![]() Well it sounds like you've done everything you can and he's just digging his heels in and being, as you say, a complete jerk. Not your fault, and if he is in a bad moody selfish patch then hopefully he might come out the other end and realise what a plonker he's been. I hope for you and your family's sake that that happens fast... My older daughter (late teens) is sooo impressed by your tattoo! She is desperate for one lol. I'm glad it hasn't caused any spread. Take care and have some chill time if you can, you deserve a treat or ten ![]() Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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#4 | |||
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Senior Member
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I'm sorry chaos...that doesn't sound like it was enjoyable at all. I hope things start to change for you soon. My boyfriend can be insensitive at times...but what you are dealing with is just unacceptable. Sounds like you have done everything you can to ask for help, explain your needs and frustrations, etc...wish I had something more to offer than just sympathetic ears to listen. Sending good thoughts your way and hoping things get better quickly.
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#5 | ||
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Senior Member
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I'm sorry you had such a bad experience Chaos. I wish I could have been there to help you and I would have brought you a present. You deserve it after all you did and all you been through. I wish I could get you all presents for being my friends and being so brave dealing with rsd as well as the holidays. People can be insensitive even family members. I've been there myself. But you have a kind and caring family on this forum. I hope your New Year is better and that you feel better soon. Take care and remember that I care and am always here if you need a friend.
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RSD ME . |
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"Thanks for this!" says: | chaos (12-23-2013) |
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