Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 12-23-2013, 12:32 PM #1
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Chaos, I'm so sorry you've had a rotten time of it after working so hard.

He does indeed sounds like he's been a giant pain in the behind rather than your help and support at such a special time. It's not fair and it sounds as if you put a lot of effort in for everyone and got very little out. It's so sad when even your family don't understand what you're going through.

Did you tell them how hurt you were that they didn't bother with gifts etc for you, or just some help? It's hard when you have a younger child because they need a little help and encouragement with gift buying, but you shouldn't have to do that yourself as well...

I so understand you wanting your old body and self back, and just to be able to do the things you used to. I feel the same. I'm lucky to have a supportive husband, who although he does a giant fail every now and then is pretty darn good day to day, but we went through a bad time early on and I still get big blues when I don't want to have to ask for things I should be able to do myself...I bet we all do.

I hope you can maybe sit your family down and explain that you just can't carry on like this, that you can't do what you want to anymore, and that you need their help around the house regularly. A list of chores up on a wall/door for them to choose from and tick off works ok for me, and means I'm not actually having to keep asking them (some smaller chores I mark specifically for my youngest who is 10, so the others don't just do those!!). I nudge if a day or two goes by without anything coming off it, but I think they feel a little less nagged A lot of the problem for us was that so much of what I did they just didn't realise I did, and didn't see themselves. I refresh the list every week and add in anything left over. It works ok, it's not a solution (we wish) but I feel less helpless and naggy, and I think they maybe realise how much I used to do (and still do!). You could even give them small treats for doing the jobs, my kids like that.

Anyway, I'm glad you got to have a bit more of your tattoo done - what is it you're having, it must be big?!

Take care of yourself, and I hope things improve for you soon. I'll be hoping the New Year brings you a fresh start in your home

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
Old 12-23-2013, 12:45 PM #2
chaos's Avatar
chaos chaos is offline
Member
 
Join Date: Jun 2012
Location: NorCal
Posts: 332
10 yr Member
chaos chaos is offline
Member
chaos's Avatar
 
Join Date: Jun 2012
Location: NorCal
Posts: 332
10 yr Member
Default

In the past couple weeks he's just gotten extra jerky. His responses to me have been "have DD do it" or "stop nagging". I have written stuff down before and it ranges from never doing it, doing a little or taking the note down and throwing it away. I complained about our bedroom to him and he started complaining about DD. Um, she has nothing to do with what I asked. I haven't been able to get him to focus on ME. Sometimes he is super helpful, just not this week.

I even gave him a list of stuff he could get for me at Target. He got frustrated with being in there and left. Mentioned something about a video game and I told him that NO, don't get me that. I rarely play video games. He's just thinking about him, always.

He's getting accupunture tonight and it better help or I'll throw a knife at him.

I'm getting this: http://www.thepinupfiles.com/elvgren/ELVGREN_img_04.jpg
But zombie, she'll be greenish and has stiches across her body. It's on my thigh and takes up a good part of it. I've had about 4 hours of work done on it so far. I need her body colored in still, I got the clothing, shoes and lips colored in last weekend. I'm kind of like "whatever, it's going to hurt anyway, just do it" camp. It didn't make my CRPS spread.
chaos is offline   Reply With QuoteReply With Quote
Old 12-23-2013, 01:24 PM #3
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Hi chaos

Well it sounds like you've done everything you can and he's just digging his heels in and being, as you say, a complete jerk. Not your fault, and if he is in a bad moody selfish patch then hopefully he might come out the other end and realise what a plonker he's been. I hope for you and your family's sake that that happens fast...

My older daughter (late teens) is sooo impressed by your tattoo! She is desperate for one lol. I'm glad it hasn't caused any spread.

Take care and have some chill time if you can, you deserve a treat or ten

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
Old 12-23-2013, 03:41 PM #4
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
Default

I'm sorry chaos...that doesn't sound like it was enjoyable at all. I hope things start to change for you soon. My boyfriend can be insensitive at times...but what you are dealing with is just unacceptable. Sounds like you have done everything you can to ask for help, explain your needs and frustrations, etc...wish I had something more to offer than just sympathetic ears to listen. Sending good thoughts your way and hoping things get better quickly.
catra121 is offline   Reply With QuoteReply With Quote
Old 12-23-2013, 05:32 PM #5
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

I'm sorry you had such a bad experience Chaos. I wish I could have been there to help you and I would have brought you a present. You deserve it after all you did and all you been through. I wish I could get you all presents for being my friends and being so brave dealing with rsd as well as the holidays. People can be insensitive even family members. I've been there myself. But you have a kind and caring family on this forum. I hope your New Year is better and that you feel better soon. Take care and remember that I care and am always here if you need a friend.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
chaos (12-23-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Tired of hugs, tired of everything! KittyLady Multiple Sclerosis 7 06-21-2012 07:00 AM
very tired! hospital_pharmacist Myasthenia Gravis 7 06-13-2012 04:29 PM
Tired of.... BlueMajo Survivors of Suicide 23 07-21-2011 06:34 AM
depressed and tired mymorgy Bipolar Disorder 11 03-26-2009 06:39 AM
Tired Mari Bipolar Disorder 8 10-20-2007 06:07 PM


All times are GMT -5. The time now is 02:44 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.