Sorry about your stomache issues,yes there is rsd stomache issues ,I know I have it ,I have full body rsd,it's the inflammation in the body causing all these issues.i had severe stomach abdominal pain cramps bloating ,eating made me feel awful,had gull bladder removed ,stones removed.nothing helped .my syked dr put me on remeron 3 years ago and it changed my life,and I tried every med for the stomache .its a anti depressant but it has a chemical in it for tge stomache .i hope you try this immediately cause I believe you will feel so much better.it works immediately.remeron will give u an appetite after taking it and you won't feel lousey after eating.also makes you sleep,hope it works for you,I know it will

Well still no answers about my tummy. I have been watching and documenting everything that I am eating and drinking.
I have found I can't tolerate rice, deer, wheat. So far . Gi dr. Says he feels I have ibs, rsd and food allergies all giving my gi track a problem. So I meet with my pain dr on the 7th and I'm in the process of getting scheduled for allergy testing. Oh yeah! Can't do beans either! Lol.
Anyone have to go through this process?

Hi alt, so good to see you!! Sorry you are still having such problems! They told me many times that I have IBS. I have so many food allergies (have gone through testing several times) and am gluten intolerant. I went gluten free several years ago and noticed a big difference. Also, one GI dr I went to did the stomach emptying study on me and said I had gastroparesis (slow digestion). With gastroparesis, it is hard to digest high fiber foods, raw fruits and veggies, and high fat foods. Those things tear me up. Have you been tested for this? From what I have read, it tends to be common in those with RSD/CRPS. Now I have interstitial cystitis (painful bladder syndrome) and that causes lots pain and issues too.

Glad you are going to your pain dr soon and that you are getting scheduled for allergy testing. IF you haven't done it already, ask you GI dr about gastroparesis.

Wishing you the best!
Nanc

Hi alt, well done on keeping track of your food and working out some things that are causing you problems...it's half the battle. I went through something similar when trying to convince my docs I had an allergy to gluten. Took nearly two years to get diagnosed coeliac, but once I was and followed the diet carefully, I felt so much better. I'm hoping things will work out for you once all the tests are over...and then you can start feeling a bit better

Keep going, it does get easier. Hope you're having an ok day.

Bram.

Nanc
Thanks for the reply. I haven't talked about gastroparesis. I want to get the testing done and talk to the pain dr. Then talkative gi about all the conclusion . I am staying away from gaseous foods and Fiberous foods. I take 2- stool softness daily, lots of protein, probiotics, Greek yogurt, almond milk, fruits, green beans and salad. This is been my primary diet. Very limited starch. Very limited bread. I was eating multigrain bread but my stomach was still hurting.

Bram, I have been down since Thursday with stomach pain. Went all day today with nothing to eat. Then I had a little popcorn around 230 did ok. So about 515 had some almonds (just natural) a little uncomfortable but tolerable. Hubby came home wants to go for pizza. I figure I can order something else . Of course they were out of this and that. So I just figure I will eat a slice of pizza. 20-30 minutes Lower stomach pain. Is it the nuts or the pizza. (2.5 hours from eating nuts)
Ugh! I just want to scream. Even the BRAT diet says everyone can eat rice. Not me.

Anyway. I'll keep u posted. Thanks so much. Any help is appreciated.

So we are on our way to church and I'm reading an article (sumarizing) for my husband about leaky guy syndrome. When he says why don't you just forget about it. If I complained about every little ache and pain.
After all this time he still does not get it. I really want to cuss him out.

I'm so sorry alt...I know how frustrating that can be. My boyfriend is VERY supportive of me but my mom can be rather obtuse at times. I love her to death...she's my mom...but she has rheumatoid arthritis and she seems to think that all these things that trigger my pain can't hurt THAT bad. I mean...you don't see her crying about every little pain she has...right?

It can sort of rip you up when people say things like that...but the honest truth I think is that unless you have RSD then they really CAN'T "get it" in the full sense. It's nothing that I could have ever imagined before experiencing it...and given the choice between people I love not understanding and wishing they could (assuming you have to experience it to understand it)...I would choose them living in ignorance every time. I wouldn't even wish this on my worst enemies (and since some of them are directly responsible for the injury that caused this monster that's really saying something).

Unfortunately...knowing these things doesn't make it any easier or make you feel any less ripped up when people say stupid things that are...shall we say...less than supportive.

Take care.

Hi alt

Catra is right....people often don't really mean to hurt you that much, they just haven't a clue, and they really do think a bad back or earache is the worst pain has to offer...unless you are actually in labour or just lost an arm. They can't imagine a worse pain, certainly not one that you have all the time with no obvious wound... We aren't thrashing and screaming every minute. I mean, we don't have cancer do we?

I try to think of the general ignorance and misunderstanding as just another symptom of CRPS that I have to accept and make my way through as best I can. I didn't ask for it, I can't do much about it, I just have to endure it and hope that it gets easier with time.

It's hard though. You want to change their opinion, you want to educate them, but if someone can't hear what you're trying to say, they just won't. So what can you do? You can go mad trying, reasoning, showing, talking. You can annoy them by going on about it long past any initial interest. Or you can shrug and remember that one day, something will happen to them and they will realise that life just isn't that simple. Maybe they will regret their attitude. Maybe not...

As far as the pizza goes, I'd steer clear if I were you... The cheese is dairy, which can cause issues if you are sensitive, the wheat is well...wheat, which is a pretty common thing to have a problem with...and the tomato is pretty acidic on a sensitive stomach. Plain foods are best until you know some more, although that's really hard about the rice. I too thought most folk were good with rice. Was is plain rice?

Try not to get completely empty, it's not good for you in lots of ways, and it means when you do eventually have food, your gut goes into overdrive to try and get those nutrients into your bloodstream quickly. Little, regular and simple is probably kinder. Try some softish cooked veg (raw veggies might be asking a lot right now), fish, chicken etc, and steer clear of anything spicy, heavy, rich, creamy, etc. Anything too nice as I used to think of it Processed foods can be tough on a delicate system as they contain so many hidden ingredients and additives.

I know it's a nightmare and must be driving you mad, but keep plodding on - hopefully between you and your docs, you'll be able to find a diet you can eat safely. At one time I couldn't eat any wheat, barley, bran, gluten etc, couldn't tolerate anything dairy, and couldn't eat anything processed. It was awful. But in time I found things I could eat without the pain and other nasty symptoms, and it's been worth it a hundred times. I'm never tempted to 'cheat'! I'm lucky now to have got some dairy back, still not milk or cream though...

I'm thinking of you and have my fingers crossed for some better news. Take careof yourself.

Bram.

Bram, at times like these I am quick to be reminded who and where my true friends are? The ones who understand me, the only problem is I can't pick up the phone or come over and complain to you all. Lol.
But thank you guys for being there this forum.
The rice was paraboil and white. Tried 2 times in one week. I know I should not be doing dairy but I am not ready to give up my coffee and half and half.
I started gathering some information today about fodmods diet. I will also have to add in hiatal hernia and rsd.
As I stood in the store today at the little gluten free section, I read the back of ingredients. If it was wheat free it had rice in it. So I I feel I'm in trouble .
Biggest thing; coffee and dessert. Love both!

Thanks for being there I will keep you posted. In the meantime I will keep plugging along.