Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-23-2013, 03:15 PM #1
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
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Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Hey Alt

Sorry your doc is refusing to see the blindingly obvious here.....if he knows the criteria for diagnosing CRPS, he should know that the most of the diagnostic evidence symptoms (ie burning skin, temp changes, blood flow issues, thinning of skin etc) would not be visible internally. But the biggest one as far as this goes is that a diagnosis of CRPS can be given in the absence of any better explanation of the patients symptoms. When you can't see what else is going on, and they've done every other test possible, and nothing else is going on (but the pain is persistent and crippling), and most importantly THE PATIENT ALREADY SUFFERS FROM WIDESPREAD CRPS (duh), then a diagnosis of CRPS in your abdominal area seems perfectly logical. To subject you to any more testing just on the basis of a refusal to diagnose something he hasn't done before seems ludicrous.

Maybe someone else on this forum has had a diagnosis of abdominal CRPS, in which case it might be possible to contact their specialist and ask if they have come across abdominal CRPS, and would they be willing to advise your specialist of that fact, along with the symptoms they recognised.

I hope someone can help you soon. Hang in there and don't give up. I hope you can enjoy some of Christmas despite what this disease throws at you.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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alt1268 (12-23-2013), RSD ME (12-23-2013)
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