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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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12-29-2013, 10:45 PM
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Hi Vrae!! You were in a funny mood using those gifs!!! Very cute, made me smile! Going outdoors as you described will accomplish multiple things: connecting with your higher power, connecting with YOURSELF in the quiet, getting sunshine and fresh air and getting away from the food pantry. Enjoy!
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1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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| "Thanks for this!" says: | Vrae (12-29-2013) |
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12-30-2013, 12:35 AM
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Hi Alt! you too? I also had yet another trip to the ER,
 oh I don’t know, but I think it was like a 7-10 days ago. So sorry to hear that you were there too  , and I have to be honest, I had to ask the Google Gods about Lipase to learn more about it. Very, very interesting. Best of luck on the resolution and I’ll be right there with ya sista. <sigh> My mind is so motivated and yet my body is saying… really? Seriously? Okay…. BUT….It’s gonna hurrttt! I see a new neuro doc in a few weeks and perhaps with enough pain control I can be more active. That would be a miracle.Oh Lottie… LMAO,  yes…. Indeed, that would keep me out of the pantry for sure. That’s brilliant! I had not considered that. I think I will have to budget more gas money for my SUV. I’m about 45 min from being submerged in the mountains, and I will need to get my husband to drive Miss Daisy. Honestly, we do run for the hills at least once a quarter and sometimes more in the summertime. You’re right, you do connect with yourself and for me, it’s also an opportunity to reconnect with my husband too. Good thing hu? Because he is the driver. lol  All kidding aside, it really does do something magical for my soul when we are able to get deep into the Rocky Mountains.  The balance thread: I did see it hon, but if I’m being honest, I haven’t read all of it, or any others for that matter. But yes, absolutely…. I’ll take a look and see if I can contribute. I’ve been bad about posting/contributing lately. Thanks for asking! Made me smile. Hope you’re doing well! Ps… yes I was in a fun/silly mood. I’m not sure that it has left me yet.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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12-31-2013, 08:20 AM
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I also want to add to my New Year's resolution to be more understanding, less judgmental and more forgiving, as well as be around people who are the same way. Happy New Year to All!
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RSD ME . |
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12-31-2013, 05:17 PM
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Mine is the same basically! I HATE the weight I've put on. Growing up I was always thin (too thin really) In my mid to late 30's I was average to thin still eating whatever I wanted. I do blame pretty much all of it on this damn monster. Between the medications, no activity and diet. I know for me it is hard to eat right when your stomach is bothering you or you are feeling horrible and can't prepare food or shop.
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Zookeeper ~Shelly~ |
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| "Thanks for this!" says: | Vrae (01-02-2014) |
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12-31-2013, 09:28 PM
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Just LOVE the original post Vrae!! So cute & funny - something we can all relate to too! I keep reading your post trying to get myself out of the dumps.
Of course, I have that battle as well. The meds have caused weight gain despite trying to be active everyday and watching diet as much as possible. I don't think 20 stellate ganglion blocks have helped by thyroid either. My real battle will be how to proceed with life in general. I know I'm about to be "separated" from my job. Really, I guess I should be thankful they've strung me along this far. My short term disability changed to long term. The long term provider required that I apply for S.S. disability. I did - 4 mos. later denied. Now going thru an atty. and waiting......................... All that is for a later post I've been meaning to do. Can't type enough before I get logged out. I'm just so slow anymore. So, for now main New Year's Resolution: Find useful purpose in life. 
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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| "Thanks for this!" says: | Vrae (01-02-2014) |
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12-31-2013, 10:25 PM
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Az-Di - Are you still receiving LTD? Most STD/LTD require everyone to file for SSD but that should not affect your ability to recover benefits owed to you for your current claim on your LTD policy. They are just looking to offset your benefit amount if you are in fact approved for SSD. Just wanted to be sure you weren't giving up on LTD while you wait for SSD approval which for some can take years. |
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| "Thanks for this!" says: | Vrae (01-02-2014) |
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01-01-2014, 02:16 PM
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I used up 60 P.T. visits (allowed by insurance) in 5 months trying so agressively to get this to "snap out of it". I'm glad for the new year to go back to that. It just feels weird. I'm 54 y/o and have almost always worked (2 1/2 yr. time out for kids). Have never even tried in my life to collect any benefit in this way.
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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12-31-2013, 10:28 PM
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Quote:
Last edited by murgir; 12-31-2013 at 11:44 PM. Reason: Adding |
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| "Thanks for this!" says: | Vrae (01-02-2014) |
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12-31-2013, 10:15 AM
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Oh my gosh!!! I can't believe you call it "driving Miss Daisy"!!! My husband and I say that all the time. Because my right foot/ankle/leg is affected, driving is a challenge. So, when possible, he drives me around. :-) Thank you for your thoughtful response on my balance thread. You are awesome!!
Go tell it on the mountains!!
__________________
1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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12-31-2013, 11:03 AM
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 lol.... And I would go to the mountains, but I am looking out my window at The Great Divide and damn girl, it looks COLD lol.... so just as soon as they get a little more above FREEZING I will tell my husband that my new friend, who ironically shares my name, said that I should do just that! I think that in the spring I will plant me some perennial Daisy's in solidification and honor of my, your, and all the others who share our name... Miss Daisy. Have yourself a good day!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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Even though most of us, if we are making a resolve to do better at something, most of these vows will be gone and forgotten by Valentine’s Day, and in some cases (probably my own too) even sooner. Nonetheless I thought I would ask… do you have any?
okay… more than a few. 
. I would love to blame it entirely on my meds, which I KNOW are not helping matters 
, but I have got to change my eating habits. It used to be that I could just burn it off. Of course I’ve never had a high metabolism 
, but I was at least able to workout. My age is certainly now also working against me too, great! 
I can’t get my head around how I’m supposed to get my metabolism up, my heart rate up because it’s not just the normal omg I haven’t used that muscle in a while, and I’ll just be a bit sore for a few days. It would be more like OMG where’s the dilaudid drip? 
And can I have one while I try to be active? Now let’s define active… Oh and we’re going to need tons of IV Zofran so I don’t puke 
, and do you even think I’ll be able to sit up, stand or even walk while I’m on these meds 
(if that was even possible)? Of course I’m being facetious… SO WHAT THE HECK IS ONE TO DO that has this damn disease? Just diet, no exercise? I guess they call it physical therapy. Well some of the priciest gyms are cheaper than PT. 
Hybrid Mode
