Thank you ALL soooo much!
 

Gooood Morning NT! :)

As always, and I do mean every… single… time, you ALL are such an amazing group of people with such beautiful, thoughtful hearts. Your responses have meant the world to me! I have to say that it took a minute (okay, two days) for me to start to move past this event and my bruised self-esteem and crying eyes to respond. And the.. Why me? Why not me?

I’m better this morning and just have to chalk it up in my GREAT BIG BOOK of experience as one more of those damn things that happens. It’s also a reminder from this same book of mine, that life can be fragile. Even if this wasn’t life threatening, I couldn’t help but think … what if?

My best friend and I were talking last night about all this (she too has a chronic incurable disease) and we had a chuckle that they (patrons & staff) are probably still talking about the “event” too. :p

I heard back from the PCP doc on call, my doc is on holiday. BTW, I really liked her!

She said she had not had a CRPS Pt. in a long time and wasn’t up on the latest CRPS stuff. I told her that I appreciated her honesty. God I can so deal with honesty vs a bunch of BS. Anyway, she said that if I continue to have the feelings that lead up to the fainting that they want to see me right away. That she didn’t feel like I was in an emergency situation at this moment.

Driving: she said that she wouldn’t recommend that I go for a long drive to the mountains, but short trips to the grocery store, etc. would be okay. She said, if you start to have the feelings that lead up to fainting to just stop my car, turn the hazards on, wait for it to pass, or call someone, or try to get help. She said, you won’t be standing up while you’re in the car. And I thought to myself.. well duh, that hadn’t occurred to me. Okay.

She too is anxious for me to see the neuro doc later this month (oh Lord let him be a good one). She’s not sure if it was the glass of wine medication combo. She wasn’t leaning toward the glass of wine being the culprit. And honestly guys I don’t take all my meds when I do something like this, mostly just gaba. She did agree with my husband that since I had taken valium for about a week, but not in 30+ hours-ish that I could have still had some in my system that perhaps did interact with the wine. Okay… maybe… (I say to myself). But what about the same feeling while driving with my daughter recently, without fainting? And I have had the same, less dramatic than either of these two events just sitting at my PC recently. I have had VERY mild of the same feelings yesterday. And, well yes, the only new drug is the valium, which now I haven’t had in days, spasms or not. If spasms get real bad again I’ll revert to soma I guess. And I've had Valium before.... <sigh>

Apparently they need more frequent, and I think more actual fainting, severe dizzy/drunk symptoms to figure out what’s going on (or some FANTSTIC Neuro doc). I did mention to her that I had done a very small amount of research on the correlation between CRPS and neuro diseases and fainting spells, and that there is one (a correlation) that I had no idea about until now. She agreed, but offered nothing more on that. Understandable, she was upfront from the beginning.

I have decided that this has also been a lesson in when you think it’s time to leave... then leave! Quit pushing so hard Vrae!! I’m too damn stubborn for my own good sometimes. It’s great in SOME aspects of my life. Although I am beginning to really question if CRPS (physically) should be on that list. Of course we have to push, but you know what I mean.

Bram darling, what a beautiful response, just like you. So very comforting… Thank you! It was a cruel scenario!! Yep, between the vertigo, gaba, other drugs, and dysfunction in my legs; you bet, I can look drunk at breakfast or any time of day, no alcohol required. You said something to me that stuck. It happened TO me, and that I didn’t cause it. Thank you! Boy did I need that!! And you were right! It will be okay. One way, or the other.

Catra, You’re right… and I need to focus on that. It was a good day until then and frankly I still enjoyed my time alone with my husband afterwards. But I have to admit that it took hours for us to come down from the jolt of it all.

Ali!! How nice to hear from you!!!! I haven’t seen you on here in ages and we’ve not really spoken before, but I think you are a wealth of knowledge and experience, and appreciate your response. I have not heard of POTS and I will definitely look more into it. I will also reach out if I have more questions about it, for sure. Thank you for offering! My head (not literally right now) is still spinning, trying to grasp and retain info about all this. And maybe POTS is just what they (articles) are speaking to when they speak of CRPS and other chronic pain Pt.’s fainting that I've read yesterday.

Collapsing on average 25+ times a day…. Holy cow!! Wow Ali, I’m so sorry and I’m glad that it sounds like it isn’t happening for you like that now. Goodness!! Thanks again for your response and I hope this finds you stable and as well as can be.

Nanc, a FAMILY of fainters… oh wow! I’m so sorry to hear that! I mean one in the family is too many. And NO WARNINGS…. Yikes! You’re right about ruling out other causes. I try not to instantly go for CRPS as a culprit when things go awry. And honestly until this week, I didn’t know that there was a correlation between CRPS, Chronic Pain, and fainting. Well, I guess that’s not altogether true. I’ve seen fainting in some past thread headlines on here, but didn’t pay enough attention. Thanks again Nanc!

Hey Chaos, Maybe it’s the meds, but I really have no idea and no knowledgeable enough doc yet to know either. I CAN’T WAIT to see the neuro doc soon. I so NEED him.

Tos, I’m so sorry hon that you have to regularly deal with seizures and also all that goes along with them. And yes, public displays of seizures, severe tremors (I’ve had that happen too publically), or really just about anything else that shows something is amiss and attracts unwanted attention, frankly just sucks beyond measure. You’re totally on point with all that you’ve said. It is ALL that…. Isn’t it? Aura, I have not heard of this. I will check it out for sure. Thank you!

Murgir, It was confusing for sure!! Disorienting. I had been watching these people for many hours before this happened, so in some weird way, I guess I was already somewhat familiar with some of their “faces” lol. I really wasn’t frightened at the time of waking up, but rather confused, but seemed to “come back” in every way, fairly quickly. Then the horror of dusting myself off (if only it was dust, but rather dripping stench of alcohol) and walking out of there. I have emblazoned in my mind though an image of my husband’s panicked face and all these crazy masks looking down and hovering over me. Bizarre!

Lottie, Lottie, Lottie …. BITE YOUR TONGUE! :D Lol Pregnancy…. :eek: Lol have I mentioned I have FIVE children and a grandbaby?? Lol I’m all kinds of good in that area of my life. lol. Love them all, but no more. Oh! … and yes, even though I know you didn’t bring this up, this all had something to do with me reminiscing with you about my love of the Rocky Mountains and my alone time with my husband, and something about setting my soul free… This wasn’t quit how I remember these wonderful times. But ya know... my memory isn't what it used to be either. Oh hell, I hope you know my words here are in jest. And I’m glad we went, and yes, I was right… it was DAMN COLD! Lol even more so SOAKING WET! I wouldn’t even put on my jacket right away because it was leather and I didn’t want it to soak up the stench, but I did give in. All kidding aside, you’re right, there are many different possibilities as to why this happened. Wonder how long it will take me to get through "the list"? Oh but wait, I can already check pregnancy off the list.. yay!!!

Yes, indeed, I feel the love, for sure, for sure. And I am SO GRATEFUL for it!


AZ-Di, Hi there hon and no it’s not cliché, it’s heartfelt and boy did I need it! Thank you! Yes, praise God I am not lying in some hospital bed recovering from Lord knows what kind of injury. I hate crowds and for the first time ever I am very thankful I was so surrounded by tons of people. I KNOW this is what had to have broken my fall. If I could have had any sense about me, I would have enquired if anyone was hurt, or perhaps I could have at least refilled their glasses of whatever.. that I’m sure I was wearing. :rolleyes:

I’m not a big drinker but I do enjoy a glass of wine from time to time and have even overdone it at least once in the last decade of CRPS on the same meds, so I guess I am just having a hard time believing this was the culprit, but I suppose anything is possible. If I have learned nothing else, CRPS has taught me ANYTHING is possible, good or bad. :) Thanks again Di!

Thanks again to all of you! From the bottom of my heart, I am more grateful for your support, lovely words and thoughtfulness than you’ll ever know!! I hope you all have a wonderful day! I’m going to see if I can’t motivate and get a few things done. TTYS!

:hug: Vrae

Good to have you back Vrae :winky: - go get 'em!!!

You are a lesson in bouncing back girl. A good one lol.

Take care of yourself. I too like the odd glass of red and am careful of meds with it. I don't see why it would cause such a catastrophic event as yours...but I too will hope for an excellent neuro doc for you, who can find some kind of answer for you. Make sure he's had his Weetabix in the morning :D

Bram :hug:

Vrea,

You already know how much I care!!

As I mentioned in our PM's Vasovagal Syncope seems like a real possibility to the reason many of us suffer from fainting or lightheaded episodes along with CRPS. Medications, Environmental factors that trigger our NS response and our well hidden fear of pain or someone bumping us can all play into these episodes among many other things. For those suffering from this symptom it might be worth looking into Vasovagal Syncope and discussing it also with your doctor(s).

Hang in there girl,
Tessa

Thank you, you two! And Tessa, yep I briefly read about that too. I still have no idea though and I think it's driving me mad as I am STILL dealing with symptoms.

Yes my mind is ready to bounce back, just not sure my body's on board yet.. damn it! Gosh I'm so trying!!

I know that I have rambled on and on about all this, so I will TRY and be brief.

I feel absolutely exhausted borderline lethargic for DAYS now. Even before I fainted, but what seems like more so now. I really don't have energy to really research much yet either.

Since fainting I am have EXTREME HOT/COLD episodes A LOT per day!!. I recently had my hormones checked so it's not that. I'm not withdrawing from any drugs. I don't have a virus.

I just had a huge wave a of feeling nauseous and "weird" feeling again. Put husband on alert. As I felt sick before I fainted.

Bad weather is coming. Gosh that's an understatement to those of you up north, so sorry you guys.. what a mess you all are in with brutal cold and tons of snow.

Tonight I'm hurting, pretty damn bad (lower back spine, upper back muscles, legs spasming like crazy, and shocks randomly striking everywhere, and hell I'm almost scared to even take anything. But it's intense, so I took a Zofran, then a tramadol, 600mg Ibu, and of course I am taking my 3600 p/day gaba regularly. Maybe that will take some edge off.

My ears are ringing.

I'm feeling emotional... again.. What the hell?? It's not period time, recently finished that. I guess I'm just feeling sorry for myself. I am confused about what's happening to me and I have no idea what to do, or what not to do.

I just want to SCREAM!!!
There... at least it's out. Sorry and thanks guys!

That's a lot to deal with Vrae....(colossal understatement of the decade :rolleyes:) no wonder you feel overwhelmed.

Hang in there, maybe you have a virus or something - stuff like that can send us crazy ill for weeks, exacerbating all our usual symptoms and introducing new scary ones. Hopefully whatever it is will pass, and you can find some solid ground to stand on again. My fingers are crossed firmly for you.

Bram :hug:

Thank you! again...
 

Thanks so much Bram!

I'm better this morning and the Zofran at least knocked me out. If I'm sleeping then I don't hurt so much. I have a massive headache this morning, and I know it is from the tramadol. Those meds kill my head for some reason, especially if I haven't had any in a while. The snow is falling and I always do better once the storm is here. Crazy hu?

I'm waking up today mad as hell with the people I live with (family). :( If I don't get everyone motivated, and that happens when I start doing everything, then hell.... it just sits, and sits waiting for me. It is rare for them to wash a dish or whatever unless I am moving everyone along. :(

Maybe I'm just P'd off about all this health crap, and the same goes for what a mess my house is in right now. Makes me nuts. :eek: Yep, I must feel better. Takes energy to be angry.

Thanks for the response Bram, and uncross those fingers... I don't want them to hurt. :wink: This will all work itself out.... surely.... :hug:

Vrae, you are a mind reader. If I were about to write a post about myself right this minute, that is exactly what I would write....:rolleyes: I read this, and was quite spooked by how well plugged in to my head you were!! :D

You're not alone with these feelings...it's strange how much better we cope with all this other crap when we aren't feeling quite so rubbishy ourselves lol :winky: Pain is a major body stress, and when we're stressed we just don't have the tolerance for other folk, and those little niggles (little! Ha!) seem enormous...

Deep, slow breaths girl. Long and deep and soothing....something nice to smell, to look at, to listen to...aaaaaaahhhhhh....mmm.....

Or....a glass of wine and some peanuts lol. That's what I've got right now!

Bram.

LMAO!! ... you rule Bram! ahhhhhh. lol

oh I forgot the ...mmmmmm. lol you crack me up!

Hi Vrae, glad to have you back online! Thank you for the detailed reply! You are too funny, even when you aren't feeling well. I am so sorry this has been such a rough week for you. You mentioned that you recently had hormones checked - was there a reason that prompted the blood check? Did they do a thyroid panel? Have you checked for a fever?