Hi Vrae,
Sorry to hear about the new challenges. I just wanted to second what Ali12 and zookester said about POTS and vasovagal syncope. Both are just different flavors of disorders of the autonomic nervous system - often referred to under the umbrella term "dysautonomia." My daughter has both CRPS and POTS, and although I don't think there's much research to confirm this (although I may be wrong), I don't think it's terribly uncommon for them to occur together, which makes sense since they both involve problems with the autonomic nervous system.

If you haven't already found it, this website is not a bad place to start for some basic information, and links to other resources: http://www.dinet.org/.

When you see the neurologist, you might want to ask him about ordering a tilt table test for you - it will measure changes in your blood pressure may be occurring from small changes in your body position.

While you're waiting, there are a few totally safe things you can do to help your self in case it is POTS, or a similar disorder: drink lots of water, and any time you change position (e.g. Sitting to standing, laying to sitting, orlaying the standing), do so slowly. The fainting that people get with POTS, is basically a like the "head rushes" that we've all experienced when we stand up quickly, just more frequent and severe. When we get a head rush, we're just feeling the result of our brain not getting as much oxygen as it would like because when we got up, our heart's job was to pump a bit harder against gravity to get blood up to our brain, and because we stood up too quickly, the heart couldn't quite do the job. Being well hydrated increases your blood volume, which makes it easier for your heart to pump blood back up to your brain (to oxygenate it) and changing position gradually, just gives your heart more time to do the job.

If you do have some kind of dysautonomia, of course there are medications, etc. That you could take, but there's no harm in trying those basic self care activities while you're waiting.

Hope you're feeling better soon-
BG

Some great points there, BraveGirl !

Vrae....Sorry your NYE getaway got so complicated. I hope you are feeling better soon.....and get to treat your hubby to anything he may have missed later that night (wink, wink, nudge, nudge). I hope the neuro can figure this out for you !

Thank you for the replies! I really do appreciate it.

My 11 y/o daughter was admitted to children's hospital tonight. I'm so exhausted I cannot even think right now, I've been up since 4 a.m., and my body is hurting. I will catch back up soon. Take care! :hug:

Hope your daughter's ok Vrae, scary stuff when you have to take them in...and it's so exhausting emotionally and physically... Take care of yourself as well and make sure you rest when you can. Thinking of you :hug:

Bram.

OH Vrae! I am so sorry to hear your daughter is sick. Please know we are thinking of you. Lots going on for you right now. I hope things ease up for you soon. Best~Lottie

sorry
 

I am so sorry that this happened to you..But one thing you are lucky about,,,,is your Husband cares deeply..God Bless,and a lot of prayers headed your way..:grouphug:

CPRS and the cardiac sympathetic plexus
 

It is very common in the 3rd stage of CPRS/RSD to suffer bouts of fainting as well as raped heart rate. There is a sac that surrounds our hearts called the cardiac sympathetic plexus it is a rich sympathetic nerve structure, and its dysfunction can cause severe chest pain. Chest pain, stroke , Fainting and even heart attacks is not uncommon in the 3rd stage of CPRS. This fact is usually over looked by doctors because most suffers of CPRS are relatively young women in age and put simply we don't have heart problems let alone heart attacks. Proper treatment with alpha blockers as well as sodium or calcium channel blockers is very helpful. Also cervical and epidural blocks are quite effective. Not trying to scare anyone but seems like us CPRS suffers cant get help unless we find the information for ourselves. I myself have been having fainting episodes and rapid heart rate. If you Google the site RSDRX It contains a wealth of RSD information.The RSD puzzle is well worth the reading. I could not believe how may symptoms I wrote off that are symptoms of my RSD.Hope the information at this website helps!!!

You all have given me some GREAT info on this fainting episode. I am so grateful... thank you SO MUCH! I have my hands full right now with my kiddo, but I am coming back around to what the heck happened that night.

Again I REALLY do appreciate the information!! I'm so pooped I'll have to keep this response short for now. :hug:

Hi Vrae, I hope you and your daughter are feeling better. I'm sorry you had a fainting spell and that your daughter had to go to the hospital. My thoughts and prayers are with you both.:hug: