Hi Vrae! Thanks! I tried the paper tape, my mother-in-law brought me some. It still irritates me. The doctors office told me to remove the steri-strips and put bacitracin on. All of the sites have been oozing big time, especially the front one. Because any tape bothers me, I put the gauze pads on and then put on a tank top to hold them in place and then a t-shirt over that. I have changed clothes four times from this afternoon until now. For bedtime, I put like six doubled layers of gauze on the front incision, a dry tank and tee...this was half hour ago and it is already soaking thru. My sister-in-law is a nurse so I called her earlier today and she said if the oozing is clear and there is no blood, it is ok. I think one of the stitches popped last night on the thoracic incision. Tonight it hurts and is burning.

I have never had incisions//surgical sites ooze like this and I have had a lot of surgeries. I just don't know what to make of this. All I know is that I am fed up! NOTHING goes right. I went to a neurosurgeon so it would be better this time...thinking it was not a good idea...I don't know.

Well, I gotta go change this gauze again

How about Tegaderm film? lol.. remember how we are both allergic to gel coatings, I am also really sensitive to adhesives and dissolving stitches and have learned that Tegaderm flim works extremely well. I always ask for plenty whenever I am at the hospital.

I really hope you aren't infected and hope you wake up tomorrow with no more itching/oozing from this.. you've been through enough!

Thanks Tessa! My husband actually got that tegaderm film. We used that for several days and I broke out from that too. Ridiculous!! That film was much easier for my husband to use (one-handed) too!

I sure hope I'm not infected. Husband told me to wake him up if I feel worse and we will go to ER. If it is still bad in the morning, we will probably go.

That is just awful, I am sorry. Do you have a fever? I am so sorry Az-Di wish there was something that you could use that wouldn't cause you grief while you are healing.

So the oozing has finally slowed down, but the itching and hurting is still there. I tried hydrocortisone cream on the area around the incision and bacitracin on the incision, as directed by the nurse. Broke out more from the hydrocortisone. I called the dr yesterday and they wanted me to come in. Dr said everything looks ok, surgically, and it is definitely an allergic reaction to the liquid adhesive they used in surgery (mastisol is the name of it). Dr suggested using benadryl cream where I was using the hydrocortisone, as well as taking oral benadryl. Tried that last night and damn if I didn't break out more from that. I only slept about 1 1/2 hours last night because the itching and burning. There are raw looking spots on two of the sites.

Yesterday I started getting burning, shooting pains in the area of the front incision...I hope and pray these aren't RSD pains.

I just want this to be over with!

Nanc, I'm so sorry I've come to your thread so late...must be a brain fog thing...

You've had such a rough time girl, I'm so sorry things haven't gone a little easier with the removal of your implants. It's all so damn unfair with this disease.

Have you looked at trying Manuka honey on your surgical sites? I know it sounds crazy, but Manuka has been known to help with wounds and skin conditions for hundreds of years, and even surgeons are using it now it's coming back onto the medical radar... It's got antibacterial properties, and is very unlikely to cause irritation, unlike traditional meds and dressings. I use it on my mouth ulcers, it's the only thing that clears them up (and quickly), and my daughter used it to clear a sore in the corner of her mouth that she had had for weeks. I've used it on small skin sores as well, although I know that's nothing like what you're dealing with.

Here's a link to the Manuka site where they talk about it. There are also medical papers about using it to clear up infected and reluctant wounds, although I struggled to find anything but the abstract. I'll keep looking.

http://www.manukaonline.com/surgical...-benefits.html

You can obviously check with your surgeon (does he have an email address?), but it might be worth a go.

I really hope you start to feel better soon, it must be exhausting. I'm thinking of you, and hope to hear some better news soon. Hang in there, things will get easier.

Bram

Hey Bram! No worries on the late arrival...I understand! I will see a post and plan on returning later to respond and will completely forget about it.

Yes, it has been rough lately. Looking for a break...somewhere! Nothing seems to be going right lately. It is getting so frustrating. Hopefully things will turn around soon.

Thanks for the info on this Manuka honey, I have never heard of it. Looks very interesting. I do not have an email address for this surgeon. I only saw him once before surgery, but I can usually get his assistant on the phone easily.

They are calling for a good snow today and the temps are gonna drop quite a bit for the next several days. I am feeling it, but I love the snow. It will be nice to watch it fall from my recliner Good thing is that I do not have to go out in it.

Thanks again Bram

Nanc

Hi Nanc, I just wanted to let you know that I was thinking of you and that I hope you're feeling a little better today. Try to get some rest as you watch the snow fall. We are expecting about six inches here. It just started to flurry. I'm staying inside too on my recliner. Take care. I will be praying that you feel better soon.

hello everybody,i had back pain and hip pain after the scs implanted on jan 2013 well since may i was complaining about flare ups and pain in my surgical site areas and my md keep telling me nothing was wrong plus the fact that my case in wc took until jan 2014 to get authorization from the insurance to reposition the scs battery to my abdomen,let me tell you the relief i get from the scs to my affected foot work at lest 60% but the back pain,hip pain and flare ups were consuming my energy day by day until the past jan 21 2014 when finally it was switched to my abdomen it feels different since the first moment I'm just waiting to heal completely and take the staples out and try again but the pain is for now control in all ways ,did work for me at least for know so I'm willing to try again otherwise i wont have any further surgery to fuse my bones on my right affected foot, i hope this time work as is supposed to and have the chance to be able to work my company had not allowed me to return with any kind of modifications is a year already lucky for me I'm union member and thats gives me 3 more months to be off and hope to get better at least in 1 so i can continue with my normal life,I'm i pharmacy technician,this is my life what i love to do and who i am with the scs problem and crps flare ups i kind of loose my identity and is getting me so hard because i don't see a day without trying to be normal,hope to all of you whatever decision you take just try one more time maybe this time will work,we all have faith and desire a future the most normal possible is hard when is not like that and we face all kind of challenges to at least go on with a single day,wao, i swear never in my life i imagine such a horrible feeling but the feeling of been not useful on any area of a daily life,i just keep my hopes high and always which we all get better soon,we might never find the answers to every question but been in touch with each other make us understand that we are not alone and we are here to support each other because in that big,huge world outer no many people know how much we struggle in life,is so sad but this is not who we are,we are not capable to do all the things normal people do but for sure we are what others are not, we are fighters, and no one will take that feeling away from any of us because we are the ones who are teaching other like us to stand still and strong, there is always a rainbow after the storm hope this new year we all can see it at least once,we deserved, hope you all doing better this year I'm also including myself because i also need a shiny day to feel everything except pain,pain won't take us down ever because we always will fight back, blessings to all and as always i wish the best.

Hi nanc,
I hope that you are starting to feel better from your removals. Sucks that you had to go thru all of that. Just a suggestion for bandages next time you need them....a bandage called OPSITE. I don't know if it is sold OTC, but I am sure ur md could get u some. We would use it on kids who were allergic to everything else. May be worth a try.
I also get horrible electic shock and stabbing pains in my bladder/ groin area...on the left side where my crps is. It is horrible, so I feel your pain there.
Again, I hope that things are looking up for you now.
Kristin