Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-19-2014, 01:42 AM #1
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Originally Posted by zookester View Post
How about Tegaderm film? lol.. remember how we are both allergic to gel coatings, I am also really sensitive to adhesives and dissolving stitches and have learned that Tegaderm flim works extremely well. I always ask for plenty whenever I am at the hospital.

I really hope you aren't infected and hope you wake up tomorrow with no more itching/oozing from this.. you've been through enough!
Thanks Tessa! My husband actually got that tegaderm film. We used that for several days and I broke out from that too. Ridiculous!! That film was much easier for my husband to use (one-handed) too!

I sure hope I'm not infected. Husband told me to wake him up if I feel worse and we will go to ER. If it is still bad in the morning, we will probably go.
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Old 01-19-2014, 11:21 AM #2
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Thanks Tessa! My husband actually got that tegaderm film. We used that for several days and I broke out from that too. Ridiculous!! That film was much easier for my husband to use (one-handed) too!

I sure hope I'm not infected. Husband told me to wake him up if I feel worse and we will go to ER. If it is still bad in the morning, we will probably go.
That is just awful, I am sorry. Do you have a fever? I am so sorry Az-Di wish there was something that you could use that wouldn't cause you grief while you are healing.

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Old 01-21-2014, 07:16 AM #3
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So the oozing has finally slowed down, but the itching and hurting is still there. I tried hydrocortisone cream on the area around the incision and bacitracin on the incision, as directed by the nurse. Broke out more from the hydrocortisone. I called the dr yesterday and they wanted me to come in. Dr said everything looks ok, surgically, and it is definitely an allergic reaction to the liquid adhesive they used in surgery (mastisol is the name of it). Dr suggested using benadryl cream where I was using the hydrocortisone, as well as taking oral benadryl. Tried that last night and damn if I didn't break out more from that. I only slept about 1 1/2 hours last night because the itching and burning. There are raw looking spots on two of the sites.

Yesterday I started getting burning, shooting pains in the area of the front incision...I hope and pray these aren't RSD pains.

I just want this to be over with!
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Old 01-21-2014, 08:02 AM #4
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Nanc, I'm so sorry I've come to your thread so late...must be a brain fog thing...

You've had such a rough time girl, I'm so sorry things haven't gone a little easier with the removal of your implants. It's all so damn unfair with this disease.

Have you looked at trying Manuka honey on your surgical sites? I know it sounds crazy, but Manuka has been known to help with wounds and skin conditions for hundreds of years, and even surgeons are using it now it's coming back onto the medical radar... It's got antibacterial properties, and is very unlikely to cause irritation, unlike traditional meds and dressings. I use it on my mouth ulcers, it's the only thing that clears them up (and quickly), and my daughter used it to clear a sore in the corner of her mouth that she had had for weeks. I've used it on small skin sores as well, although I know that's nothing like what you're dealing with.

Here's a link to the Manuka site where they talk about it. There are also medical papers about using it to clear up infected and reluctant wounds, although I struggled to find anything but the abstract. I'll keep looking.

http://www.manukaonline.com/surgical...-benefits.html

You can obviously check with your surgeon (does he have an email address?), but it might be worth a go.

I really hope you start to feel better soon, it must be exhausting. I'm thinking of you, and hope to hear some better news soon. Hang in there, things will get easier.

Bram
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Old 01-21-2014, 08:26 AM #5
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Nanc, I'm so sorry I've come to your thread so late...must be a brain fog thing...

You've had such a rough time girl, I'm so sorry things haven't gone a little easier with the removal of your implants. It's all so damn unfair with this disease.

Have you looked at trying Manuka honey on your surgical sites? I know it sounds crazy, but Manuka has been known to help with wounds and skin conditions for hundreds of years, and even surgeons are using it now it's coming back onto the medical radar... It's got antibacterial properties, and is very unlikely to cause irritation, unlike traditional meds and dressings. I use it on my mouth ulcers, it's the only thing that clears them up (and quickly), and my daughter used it to clear a sore in the corner of her mouth that she had had for weeks. I've used it on small skin sores as well, although I know that's nothing like what you're dealing with.

Here's a link to the Manuka site where they talk about it. There are also medical papers about using it to clear up infected and reluctant wounds, although I struggled to find anything but the abstract. I'll keep looking.

http://www.manukaonline.com/surgical...-benefits.html

You can obviously check with your surgeon (does he have an email address?), but it might be worth a go.

I really hope you start to feel better soon, it must be exhausting. I'm thinking of you, and hope to hear some better news soon. Hang in there, things will get easier.

Bram
Hey Bram! No worries on the late arrival...I understand! I will see a post and plan on returning later to respond and will completely forget about it.

Yes, it has been rough lately. Looking for a break...somewhere! Nothing seems to be going right lately. It is getting so frustrating. Hopefully things will turn around soon.

Thanks for the info on this Manuka honey, I have never heard of it. Looks very interesting. I do not have an email address for this surgeon. I only saw him once before surgery, but I can usually get his assistant on the phone easily.

They are calling for a good snow today and the temps are gonna drop quite a bit for the next several days. I am feeling it, but I love the snow. It will be nice to watch it fall from my recliner Good thing is that I do not have to go out in it.

Thanks again Bram

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Old 01-21-2014, 09:24 AM #6
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Hi Nanc, I just wanted to let you know that I was thinking of you and that I hope you're feeling a little better today. Try to get some rest as you watch the snow fall. We are expecting about six inches here. It just started to flurry. I'm staying inside too on my recliner. Take care. I will be praying that you feel better soon.
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