Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-08-2014, 05:31 PM #1
rory47 rory47 is offline
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Default Eye pain

Hi. I was wondering if anyone has ever experienced pain in their eyes due to rsd? I have been having a really hard time sleeping the past few weeks, even though I am exhausted beyond belief. Once I did get to sleep last night, i was woken up with what seemed to be the same pain pattern that I have been experiencing in my arms, legs, feet, but now in one of my eyes. It lasted about 30 min, and then was just a little watery after. So far today, I have not felt it. It wasnt usual eye strain pain, but sharp jabbing pains. I do wear glasses for reading, and just had my eyes checked 3 months ago.

Maybe this pain is not related. Has anyone ever had pain in their eyes due to rsd? I dont even know if I have rsd, although 2 drs are thinking so. I was finally approved for a neurologist, although the first office I spoke to has a 9 month wait, but my dr found another with only a 3 month wait. After having pain for years, 3 months should be a piece of cake!!!

The burning I have been having in my legs has now gone to my face and one
arm. My skin does not feel hot when this happens, its more like its deep inside. I do have one hand and one foot colder than the other, though.

I posted my story under a previous thread titled " could this be rsd?" with a complete story of whats been going on. I appreciate any insight anyone has.
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Old 01-08-2014, 07:40 PM #2
murgir murgir is offline
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I don't have the pain like yours but do have burning around my eyes and eye lids and my eyes are blood shot.
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Old 01-09-2014, 03:53 AM #3
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Hi rory,

I'm sorry that I can't give you much help, but hang on in there because I'm certain others on these boards have discussed symptoms very similar to yours in your eye, and that it can indeed be related to the CRPS. I also wanted to reassure you that it might not be - my daughter recently had some horrible episodes of eye pain that made her cry, and it turned out she wasn't wearing her glasses enough, and it was straining her eyes, which then gave her the pains. The optician said eyes can give horrible pain. He checked her over for glaucoma (pressure build-up that can cause pain), but her eyes were fine, and when she started wearing them more (TV ) she hasn't had one since.

I'm not saying this is what your pain is, just that lots of things can cause eye pain, and you need to get them checked by an optician to rule out other things. Like with any diagnosis of CRPS, firstly you have to rule out anything else that might be causing the pain...

Have you tried doing a search on this site for 'CRPS in eye'? That should bring up anything here. You could also try a google search of the same terms.

I hope it eases off today for you. Eye pain is horrible at any time, but when you're already dealing with CRPS, you don't need anything else. Take care.

Bram.
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Old 01-09-2014, 02:06 PM #4
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Yes I have the same thing as you with the eyes it is because of the rsd I have in both my shoulder arms an hands it is because of the nerves they run in the arm an up to the face
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Old 01-12-2014, 09:53 PM #5
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I have RSD in my eyes and they burn to where they swell and turn purple. my doctor gives my eye drops with a little prednisone in them but it must be used very little as possible like one sm. bottle lasted me 5 years its just the prednisone can cause problems if used continuously day in day out. but they are a relief.
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Old 01-12-2014, 11:01 PM #6
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I saw flashes of lights one time in my right eye that lasted for about twenty seconds that my eye dr said may be due to my sympathetic nervous system being affected by my rsd. I never saw flashes again after that so my eye dr said not to worry about it. I hope you feel better soon.
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Old 01-13-2014, 01:27 AM #7
rory47 rory47 is offline
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Thank you both for your replies. The good news is that my eye hasn't been bothering me as much, but, oh boy, just about every other thing has been getting worse. Burning everywhere and unrelenting pain in alot of places. But I am very thankful that my eye is not acting up. I did have a bad burning sensation just under that same eye, but not in it anymore. When it comes to the eyes, that is kind of scary to me. Crossing my fingers the rest of my body will follow suit and slow down with all of this!!

Thanks again
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