Thanks Bram for your as always encouraging words. Its good to be able to talk to others who know what I'm feeling.I do have a wonderful family, but its hard for them to understand, I'm sure.

As I'm writing this, the burning has now gone into my fingers and is in my face, right under my eye. Everyday seems to bring something new!! My left leg is the only part that is pain free, so that's something to be thankful for at least.

Take care, and thank you !

Hi Rory, I'm sorry you're in so much pain. I wanted to tell you that when I feel real bad, I try to stay calm and lie down with a heating pad on my painful areas. I make a cup of tea and have chocolate nearby. I also watch a comedy on tv and take my pain meds. I take extra pain meds (which my dr okay'd) when I have really bad rsd pain flares. I then try to remind myself that the flare won't last forever, and try to distract myself until it passes. I call this my rsd flare list/kit. I got this great idea from Brambledog. It has helped me alot. I hope your flares pass soon and that your neurologist can help you to feel better. Take care.